Starting with my diagnosis.I use to have abdominal pain since 2 years,got ultrasounds done but nothing showed up.Finally in april 2017,I got diagnosed with asps.I had around 6cm mass and mets in both lungs.I consulted few oncologist and most of them told that its incurable and gave me palliative treatment approaches.I had been told to get chemo done first.Only one oncologist whom Im following primarily said to have resection of primary and lung mets both.
In may 2017,My primary mass from abdominal was removed with clear margins.Now problem is lung mets.I have around 13 mets.My oncologist wants me to get it resected.Whereas,two oncologist oppose this idea and said to try for chemo first.As the mets can regrow soon after surgery too.So its better to have chemo first to stop them from increasing.Also they're not sure if the chemo would work as asps is chemo and radiation resistant.I know that there's no definitive answer to treatment.But Im very confused regarding which treatment to opt for lung mets.Here in my country(Pakistan)we don't have any sarcoma specialist nor much researches or tarils are done.Im scared of the lung surgery as the damage is too much.I can walk,breathe fine now but after lung surgery my breathing would get effected.Im unsure wether to have thoracotomy first or to try chemo or medicine like sutent,watch their response and then go ahead for surgery.Plus I had been trying to approach Dr drewes(Germany)but haven't got any reply yet.
I would be very thankful if I can be benefited from anyone's treatment experience or help.My wishes and prayers for all fighting this battle
