Personal Stories and Updates

Forum

Topics

Posts

Last post

Success Stories
Patients who have no evidence of disease (NED) or stable for decades
Topics: 11

11 Topics

82 Posts

Last post Complete Response to Dual Imm…
by Johannes View the latest post
Wed May 06, 2020 8:44 am
Rest In Peace
Those who lost their battle with ASPS
Topics: 35

35 Topics

3699 Posts

Last post Re: Tom from Pennsylvania - D…
by D.ap View the latest post
Fri Sep 17, 2021 5:23 am

New Topic

131 topics

Announcements

Replies

Views

Last post

ATTENTION ALL PD-1 patients: 5x higher response rates reported on a HIGH FIBER DIET and more lifestyle things

Last post by jcs2007 « Fri Sep 03, 2021 7:12 pm
Posted in Guest Book
Replies: 11
by Ivan » Sun Mar 03, 2019 12:26 am » in Guest Book

11 Replies

802205 Views

Last post by jcs2007
Fri Sep 03, 2021 7:12 pm
The Comprehensive ASPS Scan Schedule & Discussion + Advice

Last post by D.ap « Sat Nov 09, 2019 9:22 pm
Posted in Guest Book
Replies: 51
by Ivan » Tue Aug 20, 2013 10:57 pm » in Guest Book
1

2

3

4
51 Replies

2162558 Views

Last post by D.ap
Sat Nov 09, 2019 9:22 pm

Topics

Replies

Views

Last post

Ivan rocking it since 2003

Last post by D.ap « Sat Jun 13, 2026 11:19 am
Replies: 668
by Olga » Fri Sep 08, 2006 8:38 pm
1

…

41

42

43

44

45
668 Replies

546417 Views

Last post by D.ap
Sat Jun 13, 2026 11:19 am
Luke from China - DX April 2013 (receiving treatment in the US)

Last post by Mgnx415 « Mon May 18, 2026 1:09 pm
Replies: 21
by lzx90415 » Sun Dec 04, 2016 9:09 pm
1

2
21 Replies

20577 Views

Last post by Mgnx415
Mon May 18, 2026 1:09 pm
Martin from Macedonia - Dx Jan 2015

Last post by sailor604 « Thu Apr 16, 2026 5:19 pm
Replies: 248
by MartinBube » Sat Jan 31, 2015 1:39 am
1

…

13

14

15

16

17
248 Replies

212799 Views

Last post by sailor604
Thu Apr 16, 2026 5:19 pm
Nino from Berlin - Dx 2015

Last post by Ninko « Wed Dec 17, 2025 11:49 am
Replies: 32
by Ninko » Wed Mar 15, 2023 12:42 pm
1

2

3
32 Replies

60649 Views

Last post by Ninko
Wed Dec 17, 2025 11:49 am
Pam from Louisiana - Dx Nov 2011

Last post by amily22 « Mon Apr 28, 2025 12:34 am
Replies: 4
by khp » Mon Dec 26, 2016 8:06 am

4 Replies

18087 Views

Last post by amily22
Mon Apr 28, 2025 12:34 am
Sam from Florida - Dx 2007

Last post by Bonni Hess « Thu Jun 27, 2024 10:50 am
Replies: 141
by jcs2007 » Thu Sep 11, 2008 9:36 am
1

…

6

7

8

9

10
141 Replies

201231 Views

Last post by Bonni Hess
Thu Jun 27, 2024 10:50 am
Alex from California - Dx Aug 2018 at 19

Last post by Janice « Thu May 09, 2024 8:37 am
Replies: 24
by Janice » Mon Feb 04, 2019 9:05 pm
1

2
24 Replies

36748 Views

Last post by Janice
Thu May 09, 2024 8:37 am
Mario from Arkansas - Dx 2007

Last post by Arch « Thu Apr 25, 2024 4:49 pm
Replies: 81
by cachabamba10 » Wed Sep 23, 2009 5:06 pm
1

2

3

4

5

6
81 Replies

134052 Views

Last post by Arch
Thu Apr 25, 2024 4:49 pm
Ellie from England - Dx Sep 2016 at 12 yrs old

Last post by Disco76lover « Fri Feb 23, 2024 2:38 pm
Replies: 169
by Disco76lover » Fri Mar 31, 2017 3:19 pm
1

…

8

9

10

11

12
169 Replies

158768 Views

Last post by Disco76lover
Fri Feb 23, 2024 2:38 pm
Sandra, UK, anlotinib

Last post by D.ap « Sun Oct 29, 2023 8:07 am
Replies: 22
by xsandrax00 » Fri Mar 25, 2022 12:01 pm
1

2
22 Replies

34647 Views

Last post by D.ap
Sun Oct 29, 2023 8:07 am
Sarah from Pakistan - Dx 2017

Last post by D.ap « Thu Oct 19, 2023 7:28 pm
Replies: 86
by Sarah Ti » Sat Jul 22, 2017 5:24 am
1

2

3

4

5

6
86 Replies

134855 Views

Last post by D.ap
Thu Oct 19, 2023 7:28 pm
Nhi from NY - Dx June 2016

Last post by D.ap « Wed May 03, 2023 8:43 am
Replies: 299
by ntran727 » Tue Jun 28, 2016 9:20 am
1

…

16

17

18

19

20
299 Replies

236308 Views

Last post by D.ap
Wed May 03, 2023 8:43 am
Tamador for brain mets

Last post by Olga « Fri Mar 31, 2023 12:07 am
Replies: 29
by Illiniparent » Fri Nov 25, 2022 12:27 pm
1

2
29 Replies

41371 Views

Last post by Olga
Fri Mar 31, 2023 12:07 am
Mandy from England - Dx 2015

Last post by Mandy « Fri Jan 13, 2023 1:20 pm
Replies: 44
by Mandy » Thu Jun 09, 2016 7:48 am
1

2

3
44 Replies

56018 Views

Last post by Mandy
Fri Jan 13, 2023 1:20 pm
Mira from Houston. DX April 2021 age 6

Last post by D.ap « Sun Jan 08, 2023 11:26 am
Replies: 10
by Sunman » Tue May 18, 2021 3:53 pm

10 Replies

20005 Views

Last post by D.ap
Sun Jan 08, 2023 11:26 am
Nattergalen (Korea)

Last post by D.ap « Wed Dec 28, 2022 8:38 pm
Replies: 3
by Nattergalen » Wed Dec 28, 2022 5:20 pm

3 Replies

12134 Views

Last post by D.ap
Wed Dec 28, 2022 8:38 pm
Cass. Beginning of my journey

Last post by Olga « Wed Aug 10, 2022 7:30 pm
Replies: 25
by Cass_OK » Mon Mar 07, 2022 7:13 pm
1

2
25 Replies

53527 Views

Last post by Olga
Wed Aug 10, 2022 7:30 pm
Geeta from UK Dx 2020 anlotinib

Last post by Olga « Fri Jul 01, 2022 11:19 pm
Replies: 25
by Kokosheru » Thu Jan 06, 2022 10:04 am
1

2
25 Replies

53655 Views

Last post by Olga
Fri Jul 01, 2022 11:19 pm
Jack from Los Angeles - Dx Feb 2021

Last post by Couchpotato1999 « Tue Jun 14, 2022 8:42 pm
Replies: 41
by Couchpotato1999 » Fri Jul 02, 2021 9:55 pm
1

2

3
41 Replies

52991 Views

Last post by Couchpotato1999
Tue Jun 14, 2022 8:42 pm
Seth from South Korea, Dx november 2017

Last post by Olga « Wed May 18, 2022 11:06 pm
Replies: 97
by seth94 » Fri Jun 15, 2018 3:00 pm
1

…

3

4

5

6

7
97 Replies

111709 Views

Last post by Olga
Wed May 18, 2022 11:06 pm
Trice Dx November 2020

Last post by D.ap « Wed Mar 02, 2022 11:49 am
Replies: 21
by gtrice » Mon Dec 07, 2020 10:54 pm
1

2
21 Replies

26467 Views

Last post by D.ap
Wed Mar 02, 2022 11:49 am
P from Thailand - Dx 2016 at 13 yrs old

Last post by Olga « Sun Oct 17, 2021 12:06 am
Replies: 53
by Phura » Sat Oct 29, 2016 4:33 pm
1

2

3

4
53 Replies

75862 Views

Last post by Olga
Sun Oct 17, 2021 12:06 am
Tom from Pennsylvania - Dx 2002, RIP 2021

Last post by D.ap « Fri Sep 17, 2021 5:23 am
Replies: 298
by Kathy » Sun Feb 17, 2008 6:52 pm
1

…

16

17

18

19

20
298 Replies

332988 Views

Last post by D.ap
Fri Sep 17, 2021 5:23 am
Ethan Dx Oct 2020

Last post by jcs2007 « Sat Aug 14, 2021 4:33 pm
Replies: 8
by ecurbow » Wed Jul 14, 2021 8:57 pm

8 Replies

18630 Views

Last post by jcs2007
Sat Aug 14, 2021 4:33 pm
Brad Dx June 2020

Last post by Ivan « Sat Aug 14, 2021 10:53 am
Replies: 43
by Naynay » Tue Jun 16, 2020 7:52 am
1

2

3
43 Replies

52584 Views

Last post by Ivan
Sat Aug 14, 2021 10:53 am
Katie from Minnesota

Last post by ecurbow « Wed Jul 14, 2021 8:46 pm
Replies: 12
by KatieHannasch » Sat Jul 03, 2021 3:05 pm

12 Replies

20343 Views

Last post by ecurbow
Wed Jul 14, 2021 8:46 pm
Kyle from Utah - Dx 2019

Last post by Naynay « Wed Jan 20, 2021 9:14 am
Replies: 21
by ky7le » Wed May 20, 2020 2:57 pm
1

2
21 Replies

28877 Views

Last post by Naynay
Wed Jan 20, 2021 9:14 am
Sharmaine from Los Angeles

Last post by D.ap « Thu Dec 03, 2020 7:24 pm
Replies: 83
by sharmeebles » Tue Mar 08, 2016 2:54 pm
1

2

3

4

5

6
83 Replies

107193 Views

Last post by D.ap
Thu Dec 03, 2020 7:24 pm
Louise from the Philippines - Dx 2019

Last post by Olga « Thu Aug 20, 2020 10:39 am
Replies: 21
by clvbenedicto » Wed Apr 17, 2019 8:31 pm
1

2
21 Replies

27416 Views

Last post by Olga
Thu Aug 20, 2020 10:39 am
Ana-Maria from Romania Dx 2017

Last post by Olga « Wed Aug 12, 2020 10:25 am
Replies: 8
by Ana-Maria » Wed Aug 05, 2020 6:07 am

8 Replies

14782 Views

Last post by Olga
Wed Aug 12, 2020 10:25 am
Daniel D in South Korea - Dx 2013

Last post by danieldew7 « Tue Aug 11, 2020 7:26 pm
Replies: 165
by danieldew7 » Thu Nov 27, 2014 12:37 am
1

…

8

9

10

11

12
165 Replies

164056 Views

Last post by danieldew7
Tue Aug 11, 2020 7:26 pm
My absence from the Forum :(

Last post by Bonni Hess « Fri Jul 31, 2020 9:07 am
Replies: 5
by Bonni Hess » Wed Jul 29, 2020 10:22 am

5 Replies

15709 Views

Last post by Bonni Hess
Fri Jul 31, 2020 9:07 am
Sona from Melbourne - Dx 2019 at 31 yo

Last post by Shamsher Singh « Sun Jul 19, 2020 4:52 am
Replies: 33
by Shamsher Singh » Mon Oct 21, 2019 4:34 am
1

2

3
33 Replies

41746 Views

Last post by Shamsher Singh
Sun Jul 19, 2020 4:52 am
Courtney from Pittsburgh PA

Last post by Olga « Mon Nov 25, 2019 1:06 pm
Replies: 13
by Ckwelk » Sat Nov 09, 2019 7:46 am

13 Replies

21989 Views

Last post by Olga
Mon Nov 25, 2019 1:06 pm
Larry from Buffalo --Dx Sept 2011

Last post by Olga « Sat Nov 02, 2019 9:48 am
Replies: 46
by Jenn » Thu Oct 06, 2011 12:02 pm
1

2

3

4
46 Replies

75317 Views

Last post by Olga
Sat Nov 02, 2019 9:48 am
Kevin from Mel, Australia dx 7/2016

Last post by Olga « Tue Oct 15, 2019 10:18 pm
Replies: 13
by kevin.n » Mon May 29, 2017 6:43 am

13 Replies

22029 Views

Last post by Olga
Tue Oct 15, 2019 10:18 pm
Daria from Russia, Dx Feb 2012 at 32yo

Last post by Olga « Sat Oct 12, 2019 1:08 pm
Replies: 15
by dfcz » Wed Nov 29, 2017 2:12 pm
1

2
15 Replies

27501 Views

Last post by Olga
Sat Oct 12, 2019 1:08 pm
Jolie's mother from California - Dx Oct 2013

Last post by D.ap « Thu Oct 10, 2019 4:20 pm
Replies: 152
by JolieS » Fri Oct 11, 2013 1:02 am
1

…

7

8

9

10

11
152 Replies

169160 Views

Last post by D.ap
Thu Oct 10, 2019 4:20 pm
Sam from Taiwan since 2002 (now 37 years old)

Last post by kn0227 « Fri Sep 20, 2019 2:21 am
Replies: 56
by kn0227 » Mon Aug 19, 2019 12:02 am
1

2

3

4
56 Replies

63521 Views

Last post by kn0227
Fri Sep 20, 2019 2:21 am
George From China - Dx 2007

Last post by D.ap « Wed Aug 28, 2019 8:33 pm
Replies: 242
by Jorge » Sun Dec 02, 2012 9:11 pm
1

…

13

14

15

16

17
242 Replies

254552 Views

Last post by D.ap
Wed Aug 28, 2019 8:33 pm
Domenic from Vancouver Dx 2018

Last post by D.ap « Tue Aug 27, 2019 4:50 am
Replies: 5
by DomenicP » Thu Jun 27, 2019 7:57 pm

5 Replies

14486 Views

Last post by D.ap
Tue Aug 27, 2019 4:50 am
Ozden from the Netherlands with ASPS since 2018

Last post by Saskia « Sun Jul 07, 2019 3:24 am
Replies: 8
by Ozden » Fri Apr 26, 2019 2:54 pm

8 Replies

16319 Views

Last post by Saskia
Sun Jul 07, 2019 3:24 am
Prairie from Nebraska - Dx 2015

Last post by Olga « Thu May 30, 2019 11:06 pm
Replies: 147
by Vega343 » Wed Sep 02, 2015 7:48 pm
1

…

6

7

8

9

10
147 Replies

159644 Views

Last post by Olga
Thu May 30, 2019 11:06 pm
Auz from Toronto - Dx May 2015 at 19 yo

Last post by D.ap « Fri Jan 11, 2019 5:01 am
Replies: 26
by Andrew Ward » Wed May 13, 2015 7:45 am
1

2
26 Replies

44403 Views

Last post by D.ap
Fri Jan 11, 2019 5:01 am
Brittany from Washington - Dx 2001

Last post by Disco76lover « Tue Oct 09, 2018 9:15 pm
Replies: 57
by Bonni Hess » Fri Feb 16, 2007 8:39 pm
1

2

3

4
57 Replies

94987 Views

Last post by Disco76lover
Tue Oct 09, 2018 9:15 pm
Kai from China - DX March 2017

Last post by all « Fri Sep 07, 2018 2:47 am
Replies: 11
by all » Mon May 28, 2018 8:41 pm

11 Replies

20690 Views

Last post by all
Fri Sep 07, 2018 2:47 am
Just a blip of my story (update)

Last post by Sarah Ti « Mon Jul 09, 2018 7:59 am
Replies: 7
by Amandafromcanada » Wed Jun 06, 2018 7:42 pm

7 Replies

17075 Views

Last post by Sarah Ti
Mon Jul 09, 2018 7:59 am
Willem from the Netherlands - DX 2013

Last post by Bonni Hess « Wed Jan 31, 2018 12:13 pm
Replies: 30
by WilL » Tue Oct 06, 2015 1:46 pm
1

2

3
30 Replies

49329 Views

Last post by Bonni Hess
Wed Jan 31, 2018 12:13 pm
Ritchie from India - Dx'd May 2011

Last post by tanya « Wed Jan 17, 2018 8:42 pm
Replies: 5
by tanya » Sat Jan 13, 2018 8:23 pm

5 Replies

16972 Views

Last post by tanya
Wed Jan 17, 2018 8:42 pm
Mark from Toronto - Dx 1988 at 18 yo (46 now)

Last post by Bonni Hess « Sat Jan 13, 2018 10:52 am
Replies: 15
by mark2014 » Thu Dec 18, 2014 5:35 pm
1

2
15 Replies

33770 Views

Last post by Bonni Hess
Sat Jan 13, 2018 10:52 am

New Topic

131 topics

Return to Board Index

Forum permissions

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum