Luke from China - DX April 2013 (receiving treatment in the US)

[Olga]

Thanks Luke, I will prob. reorganize that later opening separate sub-forums for Keytruda and Opdivo etc.
I was thinking about your neck area met that grew rapidly. Is it on the same side where the primary was, in proximity to the resection site? I was wondering if it might be the local recurrence after incomplete resection. A bit to aggressive for the distant met.

[jenhy168]

Hi Luke,
welcome to the forum~ Thanks for posting and hope to hear more updates from you as time permits regarding how you're doing on the clinical trial. I'm glad to hear that it's been helping so far.

Kind regards,
Jen

[lzx90415]

Thanks Luke, I will prob. reorganize that later opening separate sub-forums for Keytruda and Opdivo etc.
I was thinking about your neck area met that grew rapidly. Is it on the same side where the primary was, in proximity to the resection site? I was wondering if it might be the local recurrence after incomplete resection. A bit to aggressive for the distant met.

Hi Olga,

The primary tumor was more or less in the middle of the base of my tongue, but it definitely could be a possibility.

[lzx90415]

Hi everyone,

Apologies for the delay in update. I'm still on the trial and it's been going really well. Here are my progress since last post:

Feb 2016 - tumor on jaw(submental mass) decreased from 2.4 x 1.3 cm to 1.3 x 0.8 cm. Other tumors stable, with a few lung nodules shrinking slightly.
May 2016 - tumor in cavernous sinus decreased from 1.4 cm AP x 1.5 cm transverse x 1.8 cm CC from previous scan to 1.3 cm AP x 1.1 cm transverse x 1.5 cm CC; lung tumors mostly stable, a few shrinked again. The biggest one measures 0.6cm

The only side effect I experience is mild diarrhea but can be managed through diet (eg. more bread and rice). Still taking the thyroid medicine Levothyroxine and increased dose to 75mg.

[D.ap]

Hi Luke

The results of a year on Keytruda and axitinib are looking amazing .
So all your lung tumors are below a centimeter now?
You are low thyroid ? Hypothyroid?

Rice and breads are a good antidiaherra food.

[jcs2007]

Luke,
thanks for the update and glad you are having positive results. My son may start this same trial in the future.
Take care!