Cure Alveolar Soft Part Sarcoma International

on June 22, 2024

The Rare Cancer Research Foundation (RCRF) is a 501(c)3 dedicated to curing rare cancers through strategic investments and innovative collaborations that facilitate effective research and accelerate deployment of promising therapies. RCRF initiated Pattern.org.

If you are going to have a surgery to remove your Alveolar Soft Part Sarcoma tumor: either your primary tumor or metastatic tumor (mets), please consider to donate your fresh tumors for research. For any question please contact Yosef Landesman (See contact information below).

If you made a decision to donate your tumors, we thank you very much. Your tumor will help to find cure for ASPS. Please contact us or Pattern.org as soon as possible, ideally few weeks before your surgery. This will ensure that we make preparations on time.

After you consent on Pattern.org, we’ll work with your doctor to collect your excess ASPS tissue and then facilitate the transfer of your samples to the the laboratory of Dr. Jesse Boehm at the Koch Institute of MIT, providing a streamlined, anonymous, and no cost way for you to have an impact on critical research.

Please reach out to me with any question.