Martha from Seattle - Dx Nov 2012

[martha_se]

Hallo dear asps family my name is mesfin am here on behalf of my sister Martha whose been diagnosed since nov.2012 ,I would like to start by applogizing each and everyone of patients, family members, caregivers ,friends etc...who spent your valuable time to share, support and try to save lives by informing your exprience and knowledge to others like me and my sister i just wanted to tell you how much we appreciate it, we were reading and asking questions through pm's for the last 2 years ,we also have been suggested to actively involved in this forum ,however because of my limited work life and martha's complicated brain surgery (unable to write or read for long periods of time )it wasn't possible....dear family the reason we want to be here today is to express our condelances and respect for the very unexpected loss of Amanda R. we have been following her asps jurney for a very long time and we were also planning to pm her when she disappear from the forum because she was very valuable to help us keep fighting this desease with her loving and caring words every day ,R.I.P Amanda your mission is well completed and heaven deserves your kind of person and we just want to let you know how much happy we are knowing that you are not in pain and suffering anymore we love and missed you Amanda!!!! We will repost martha's asps jurney in the next post for now it's nice to meet each and everyone of you with hope,love and support have a blessed day!!!

[D.ap]

Dear Martha and Mesfin,

Thank you so much for your words of condolences to Amanda and her family.
She is so very missed by us all here.

I am looking forward to hearing of Martha's story however I want to say that I am so sad that she has ASPS.

Nice to meet you.
Till next time-

Love
Debbie

[Bonni Hess]

Dear Mesfin,
Welcome to the Discussion Board and thank you so much for your very kind words, and for your beautifully expressed message of special caring and sympathy for our dear Amanda's devastating loss. If she were still here in this World and able, Amanda would certainly welcome you to the Board with genuine kindness, caring, and words of special encouragement and Hope for your dear sister Martha and her courageous ASPS battle. It has been my great pleasure and privilege to personally talk with you several times during the past year, and I am so deeply grateful and appreciative that you have now followed my suggestion to post and participate on the Board. All of us in this CureASPS Community Family certainly know and understand very well the demands and time constraints of trying to work and maintain personal Lives while fighting this very challenging disease, and are very appreciative whenever someone is able and willing to take the time to post and share invaluable anecdotal treatment information. We will look forward to your updates about Martha's ASPS journey and treatments whenever you are able Mesfin. In the meantime please take care, know how deeply grateful I am that Martha has such a devoted, loving, and supportive brother, and know that you and Martha are not alone on your ASPS journey and in this difficult battle with this extremely rare disease.
With special caring thoughts, healing wishes for Martha, warm friendship, and continued Hope,
Bonni