Cure Alveolar Soft Part Sarcoma International (iCureASPS)

It is not the same as MD Anderson trial. The new drug is as follows: "MEDI5083 is an antibody drug that binds to a protein called CD40". The doctor explained it to me as a drug that will put the "accelerators" on my immune system. A few cycles and injections of this drug, is then...

Hi all, Just a quick update on my treatment. I am beginning a clinical trial over the next few months. Hopefully I wont encounter any problems during the screening process. It will be a combination of a few cycles of a new trial drug followed by cycles of durvalumab. I'll look to share any informati...

Hi All, I hope you've been well. It's been 5 moths since my last post and not much has changed. Around 3 months back I had my doctors checkup with a stable growth in my spots. I asked questions about surgical(vats, cryoblation, rfa) and ablative procedures but was told it was impractical. They said ...

Thanks for the prompt response Debbie. I do have great team of doctors at the moment. Although I sometimes regret not getting a biopsy done back when I discovered the lump or having my initial doctor push for it. No positive margins were considered back then. I was misdiagnosed with Arteriovenous Ma...

Hi everyone, I just recently stumbled on this forum and it is good to see some activity on it. I am 21 year old male just graduated from university, living in Melbourne, Australia. Currently, working full time at a consulting firm during the treatment of ASPS. My story begins in December 2014 where ...