Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Update: I was scheduled to have minimally invasive surgery to remove the lung met near the heart/diaphram at the NIH NCI, but that has been put on hold; I was informed last week that pre-surgical testing revealed three brain mets (two are less than two mm and one is one cm). I am now in the process ...

Thank you for the recommendation of Dr. Littrup. I will start to research his treatment and technique and see what my doctor (Dr. Tap, Med Onc at Sloane Kettering) has to offer after he speaks with his team of experts. Thank you. I will keep you posted.

Sorry to have gone quiet for so long. It has been 27 months since my initial diagnosis and 20 months since resection of my primary tumor (in my butt/hip). After six months of chemo (Sutent) and a heavy dose of radiation, I had the primary tumors resected in March 2013. The resection was done by Dr. ...

Hello, everyone. While I knew I would be silent for a bit after surgery, I had not predicted it would take this long to get back to writing about my ASPS. I guess that after talking and thinking non-stop about ASPS for the nine months leading up to surgery, I was just ready to not think about the di...

Thank you for your kind words and advice; they have been both helpful and encouraging. I am sorry not to have responded sooner; the last month has been a whirlwind of radiation sessions and meetings with orthopedic oncologist all over the eastern U.S. I visited with a number of surgeons and received...

Hello, all. My name is Brian and I am a 36 year old husband and father of three from Virginia (just outside Washington, DC). I was diagnosed with ASPS in June 2012. I have never posted anything on an internet board before, so please forgive me if this is not in the right format, or if the details ar...