Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Kathy, I do remember reading about Tom's journey with ASPS, and noticed that there were a lot of similarities with my own. Dr vonMehren (I think I read that Tom did a trial under her?) is actually my primary (med) oncologist. It's very encouraging to hear of successes in situations that are so simil...

Ivan wrote:Well, at least it's not growing - that's a good thing. I hope it does shrink a bit to make the resection simpler, and less invasive. Good luck!

Thank you so much Hopefully everything goes well with tomorrow's appointments!

I know I haven't posted anything for quite some time now, I am sorry for that. I just wanted to drop by and give a quick update as to what has been going on. About a month ago I met with Dr. vonMehren (my primary oncologist at Fox Chase), as well as the surgeon and orthopedic surgeon that will be wo...

Olga, thanks. I saw that some were organized this way but wasn't sure. Thanks for keeping everything together for me!

Hi all. Sorry I haven't been back on here in a while. Things have been so incredibly hectic around here, which I'm sure you are all familiar with. So, it's been about 3 weeks since i have started the Sutent, and we have had some positive results. I went for a CT Scan yesterday, and while there was n...

I know there are other scans that will be done, and I am aware of the importance of the brain scans. I have several followup appointments scheduled in the coming weeks, and I know that a lot of that will be discussed. Even though I have a diagnosis, and seem to be starting on a plan of action, it st...

Things have been super crazy for me in just that past few weeks. I luckily came across this site and forum in my online travels. I just wanted to stop and introduce myself. My name is Allison, I just turned 28 in Feb of this year. I was having some pain/numbness issues with my left leg/knee. After s...