Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Olga and Debbie, both thank u so much for ur reply. I will for sure continue with the cediranib en see with the next scan (16 may) if there will be any changes. I am taking the cediranib for a month now, 2x a day. Also i will discuss with my dr about the ICI drugs. I understand that not removing the...

And here are my scan of my lungs and pelvic

Thank u Debbie for your relply, I'm not sure if its possible to remove the pelvic tumor. Although i really want to remove it, but my doctor told me its very risky since its too big and because i have lung metastasis. My doctor want me to only take medicine and wait and see if it does something. but ...

Hello, my name is Ozden, 26 years old from the Netherlands. One year ago i went to the docter because some pain in the lower abdomen. After some test i was diagnosed with ASPS (august 2018) in the lower abdomen pelvis, with a tumor size about 10 cm. Also the CT scan showed alot of metastasis in both...