Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Sorry Deb but Outward perimeter showing activity probably means an incomplete ablation at the margins with the inside part ablated dead, happens often with the bigger mets. Need to see the full report. Cryo can be repeated to fix it

Hello Olga
Thank you . At the consultation , I believe that was discussed . (I wasn’t there)
I believe the scan was sent to Dr. Auon, to review.
The tumor was quite large (6cm) and even with 4 probes?, I think we were thinking there was a chance of not killing it all. For all practical purposes , the liver tumor was as big as Joshua’s rt upper leg tumor was, when removed in 2012.

Joshua’s 4cm liver tumor back in 2015, I believe was performed with 2 , with a one time success .

viewtopic.php?p=10085#p10085P

Hope you all are well.💕
Love ,

Hey all
Joshua’s lung and liver were rescanned .
Lung inflammation has resolved but as was suspected , the liver MRI showed perimeter activity .
Josh will have the cyroblation performed this Friday .
Not sure of the specifics Ie number of probes and area to be treated .

Hope to report more after Friday’s procedure .
Hope all is well with all.
Love ,

Thank you for the update. Cryo is a good procedure as there are less repeated attempts limitations, it can be repeated to fix the recurrences. We wish Josh the fast recovery. Good to hear that the lung inflammation is resolved.

💕❤️
Thank you Olga.
Love a bunch,

Hello all
Kids are home and Josh is recovering .
The ablative area is reportedly quite bruised.
So consequently took a boost in anesthesia.

Our IR put the whammy to certainly make sure margins were obtained .
So our hope is that
A) it totally killed the tumor
B) it kept any peripheral metastatic seeding

Josh will most certainly be sore 😕😬
But I feel it’s the best course
And we have great confidence in our team .

We will update soon .❤️

Hello all
Had our MRI
Waiting on the liver cyro-ablation # 2 of the almost 6cm tumor, results.
Will update soon .
Keep the faith .❤️
Love ,

Received results on liver ablation(s)

“ MRI was good. Seems to have gotten everything this time. “
Thank you all for continued support .
Love,

Super happy for Josh and all of you!
Cryoablation is such a versatile technology in experienced hands, gently enough to be repeated to correct the shortcomings caused by by the rather large initial size of the liver met. Just make sure he is scanned in another few months to check on the margins.

Thank you Olga!
Absolutely , cryo and RFA are the bomb.😊
With ASPS indolent tendencies , these techniques are truly a God send for our loved ones .💞
Love ,

Hi all,
Joshua was taken by ambulance to local ER , yesterday after what was determined to be a minor seizure .
However we are currently forging , forward to investigate outside of the emergencies rooms , expertise observations.
Our team Neurologist and oncologist on board . Ccd

MRI was performed today , tele Med appt to talk of the results tomorrow .
Tentative infusion sched next weds / and or COVID drive thru test Tuesday .

Will update when able .
Love ,

Sorry to hear that, Deb. It was the brain MRI performed, correct? When was his last (previous) brain MRI done?

Hi Olga
Apparently the MRI looked fine.
Our next visit is with neurologist .
We are on vimpat till further notice .
So as Josh has no memory of what happened , we are relying on symptoms and blood work .

Perhaps a bone scan or spinal MRI could be useful too. I am sure the neurologist would be able to address other possible causes for the seizures besides of the brain met.

Thank you Olga
We are scheduled for a bone scan .
Why a spine MRI?
Thinking of some kind of spinal inflammation ?