Chris Harris - Dx 2005

[Yosef Landesman]

Dear Yosef Landesman,

Thank you for your contact. We were very disappointed when the forum closed and are pleased to see there is a new one set up. The forum was our only point of further information and specific support when our son Chris was diagnosed last November. At least we felt there were others out there in the same position looking for answers. It made a considerable difference to us to know we were doing everything possible for him. Sadly we lost our wonderful son on 17th June. The steroids to keep him alive finally took their toll on his health. We know that everyone will continue to look for a cure for this dreadful disease and hope that something can be found soon. We cannot find a relevant place on the new site to post this e mail and hope that you can forward it on to thank all those who have helped and supported us throughout this year. We really did appreciate the forum and if we, with our very limited knowledge, can be of any help to others we can be contacted by e mail.

With thanks,
Jackie and Mike Harris