Amanda R :) from California - Dx 2009 - RIP March 2015

Those who lost their battle with ASPS :(
D.ap
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Re: Amanda R :) from California - Dx 2009

Post by D.ap »

Glad to hear that it's scheduled Amanda
It will be here and over before you know it
Thanks for the update
Love
Debbie
Debbie
Amanda
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Location: Los Angeles, Ca

Re: Amanda R :) from California - Dx 2009

Post by Amanda »

Hello :)
I had the CT brain done an no tumors! I joked an said "Oh there was no brain found" My Onc looked at me an I don't think he found it funny :? I did lol

In the middle of getting teeth cleaned and getting everything ready for surgery on the !5th of November!

Other than teeth cleaning what else would everyone suggest to make my immune stronger?

I am almost 4000iu D 3 an K an minerals an multi vit to be ready for the surgery! I was in trouble with my D and so i need to be carful! Also i was told that after any surgery it stripps minerals and D an other things out of you an you must watch this carefully an have a Dr let you know how much to take an in what form.
“Many times it is much more important to know what kind of patient has the disease, than what kind of disease the patient has”.
"The microbe is nothing, the soil is everything)""
Claude Bernard~

Amanda
D.ap
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Re: Amanda R :) from California - Dx 2009

Post by D.ap »

Amanda
I laughed at your joke..great news on the scan
I recommend more joke after surgery! Doctors orders! Good for the soul :D

Love
Debbie
Debbie
D.ap
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Re: Amanda R :) from California - Dx 2009

Post by D.ap »

Amanda
You had blood work to check your vitamin D?
A website says:

Try to supplement your vitamin D through food, if possible. A cup (237 ml) of fortified milk provides about 30 percent of your daily value. 3 oz. (85 g) of salmon or mackerel provides about 100 percent of the daily value. 3 oz. (85 g) of canned tuna provides about 40 percent. Eggs, liver and fortified cereals can provide about 10 percent of your daily value.
YOu probably know this but diet is the best way if possible..let your surgeon know of any vitamins you are taking or better yet call to make sure its ok to take well BEFORE surgery. Fish oil is a blood thinner and could lead to internal bleeding after surgery

Love,

Debbie
Debbie
Amanda
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Location: Los Angeles, Ca

Re: Amanda R :) from California - Dx 2009

Post by Amanda »

Hi Debbie <3
Yes, it was low an i agree 100% food is healing and it is the best way to get what you need :) I am doing two forms of D3 and use yogurt with it so it enters better :) but even trying to heal thru food i am or was still low :( Surgeries deplete the body an getting it back is so hard to do!

Yes,i like to joke it helps and makes others laugh and thats very important! :)

Yes, we found out because i was so wiped out an thru blood work.. I also asked for Endo blood work be done an that was good I was shocked.. I am green drinking also a lot before the surgery for iron an also for cellular hydrating.

*hugs* :)
“Many times it is much more important to know what kind of patient has the disease, than what kind of disease the patient has”.
"The microbe is nothing, the soil is everything)""
Claude Bernard~

Amanda
MarietjievdMerwe
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Re: Amanda R :) from California - Dx 2009

Post by MarietjievdMerwe »

Hi Amanda!!!

Great news on you scan. :) So happy for you. I adore your jokes and sooooo agree with you that laughter still is the absolute best medicine!! Will be praying for you that your surgery goes well.

Keep well.
Marietjie.
Amanda
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Location: Los Angeles, Ca

Re: Amanda R :) from California - Dx 2009

Post by Amanda »

Hi Marietjie :)

Ty <3
“Many times it is much more important to know what kind of patient has the disease, than what kind of disease the patient has”.
"The microbe is nothing, the soil is everything)""
Claude Bernard~

Amanda
Ivan
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Re: Amanda R :) from California - Dx 2009

Post by Ivan »

Carb-load before surgery starting 48 hours before - http://well.blogs.nytimes.com/2012/09/2 ... gery/?_r=0 - especially if you are concerned about losing weight.

Post-operatively, bring your hand behind your head or hold it there so that a normal range of motion is preserved, otherwise stretching will be difficult after.
Amanda
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Location: Los Angeles, Ca

Re: Amanda R :) from California - Dx 2009

Post by Amanda »

Hi Ivan :)
Thank you, i will do these!
I need to lose a lil weight. But i think that surgery isn't the way thru stress on the body to loose the weight... How long after can i get on an exercise bike do you think?
An how are you feeling now an what's going on?


Ivan wrote:Carb-load before surgery starting 48 hours before - http://well.blogs.nytimes.com/2012/09/2 ... gery/?_r=0 - especially if you are concerned about losing weight.

Post-operatively, bring your hand behind your head or hold it there so that a normal range of motion is preserved, otherwise stretching will be difficult after.
“Many times it is much more important to know what kind of patient has the disease, than what kind of disease the patient has”.
"The microbe is nothing, the soil is everything)""
Claude Bernard~

Amanda
Ivan
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Re: Amanda R :) from California - Dx 2009

Post by Ivan »

Then don't worry about carb-loading. Wouldn't be surprised if a thoracotomy would rid of 5 lb of fat by the time all is said and done.

Stationary bike, I think 1.5-2 weeks later. Just start really low wattage like barely breaking a sweat. I wouldn't go out riding on the street until 3-4 weeks. If you fall down..

I feel fine. I've been having a terrible cold lasted over 2 weeks. I think as soon as it's done (finally) I will be back to full strength.
Amanda
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Location: Los Angeles, Ca

Re: Amanda R :) from California - Dx 2009

Post by Amanda »

Ok, i will use it as a fat off lol I will get two things out of the way :)

I will go to the gym then at two weeks an start slowwwww an after the surgery that next day do the arm things! Thank you! Isnt it nice these sucky things that happen eo tuse we can use to help eachother :)

I know a few people that were hit by a very strong cold and it got very very bad also! It took a long time to go away like your did! I am so glad it is getting better an i know you will be back to doing your regulare life soon an i am happy!!!


Ivan wrote:Then don't worry about carb-loading. Wouldn't be surprised if a thoracotomy would rid of 5 lb of fat by the time all is said and done.

Stationary bike, I think 1.5-2 weeks later. Just start really low wattage like barely breaking a sweat. I wouldn't go out riding on the street until 3-4 weeks. If you fall down..

I feel fine. I've been having a terrible cold lasted over 2 weeks. I think as soon as it's done (finally) I will be back to full strength.
“Many times it is much more important to know what kind of patient has the disease, than what kind of disease the patient has”.
"The microbe is nothing, the soil is everything)""
Claude Bernard~

Amanda
D.ap
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Joined: Fri Jan 18, 2013 11:19 am

Re: Amanda R :) from California - Dx 2009

Post by D.ap »

Good morning Amanda
As a family we discovered refined sugar is best avoided as much as possible as it appears to help feed cancer and lots of cells
After surgery it will be a good food to help build up
http://search.yahoo.com/r/_ylt=A0oG7hDS ... ogurt.html
We've found Greek yogurt to be the lowest in sugar and a yogurt that still have the benefits that yogurt brings to the table
Thinking of you
Love
Debbie
Debbie
Amanda
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Posts: 825
Joined: Mon Feb 02, 2009 2:02 pm
Location: Los Angeles, Ca

Re: Amanda R :) from California - Dx 2009

Post by Amanda »

Hi :)
I am a greek yogurt fiend lol I love it! It will help a lot also after surgery to help my system get back on track an it also gelps i take vitamine D with it an it goes in better :)

I only use sugar in my espresso when i can't find honey hehee I love that! Honey is also bad though to be honest



I may have an abscess under my back tooth an it maybe why my chin is STILl numb an the pain in my jaw *sigh* so surgery may be pushed a week or two we will see what my Onc says ..
I see the ENT tuesday an then will be referred to a maxi facial specialist *At my request because a nerve in involved* I am not screwing around at this point time is ticking...


Ill post back what happens at the Dr when i get home tuesday :)
“Many times it is much more important to know what kind of patient has the disease, than what kind of disease the patient has”.
"The microbe is nothing, the soil is everything)""
Claude Bernard~

Amanda
D.ap
Senior Member
Posts: 4138
Joined: Fri Jan 18, 2013 11:19 am

Re: Amanda R :) from California - Dx 2009

Post by D.ap »

Amanda

Dang it , huh?
Well you are right You don't want to go into surgery with a preexisting problem/infection
Hope you find out good news Tuesday
Take care

Love
Debbie
Debbie
Amanda
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Posts: 825
Joined: Mon Feb 02, 2009 2:02 pm
Location: Los Angeles, Ca

Re: Amanda R :) from California - Dx 2009

Post by Amanda »

Yes, this hurts like hell :(
vision is bad an ear hurts!

trying nasacort AQ till Tuesday... Great MORE drugs please ><
“Many times it is much more important to know what kind of patient has the disease, than what kind of disease the patient has”.
"The microbe is nothing, the soil is everything)""
Claude Bernard~

Amanda
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