Jessica from California - Dx 2007
Jessica from California - Dx 2007
I had a MRI at 1/22/2007,because I had this head splited headache,they sent me in through ER,they told me I had 6 tumors in my brain and I certainly can't drive.I had the biggest tumor took out by neuronsurgen at 1/24.After brain surgery,they tried to explain what I have,I have the primary from my right calf and mets to my lung and brain. the radiation guy propose whole brain radiation,I refuse it,I fight for Gamma knife,I will have it at 2/20.Jessica
I am diagnosed with Alveolar soft part sarcoma (ASPS).
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Bonni Hess
- Senior Member
- Posts: 1678
- Joined: Mon Aug 14, 2006 11:32 pm
- Location: Sammamish, WA USA
Dear Jessica,
I am so deeply sorry for your recent ASPS diagnosis and for the numbing shock, deep pain, and immense fear which I know that you and your family must be experiencing right now. I am grateful that you found your way to our Web site so quickly and that you have reached out to the ASPS Community for help and support on your journey with this extremely rare disease. I am glad that the neurosurgeon was able to successfully resect your largest brain tumor, and am Hopeful that the remaining brain tumors can also be surgically removed or destroyed with Gamma Knife or Cyber Knife treatment, instead of Whole Brain Radiation which can have some concerning long term negative side effects. Do you know what the size and location of the remaining brain mets are? Also, what is the size of the primary tumor in your right calf, is it resectable with good margins, and has surgery been scheduled yet to remove it? I know that you are probably overwhelmed by all that is happening to you right now, but please know that you are not alone in your battle, and that we are all here to help you with shared information and strengthening support. Please take care dear Jessica, keep in touch with the Web site as you are able, and contact me personally at BonniHess@aol.com if you would like to. I will be holding you very close in my heart and my special caring thoughts, and praying for a successful outcome to your upcoming Gamma Knife treatment.
Reaching out with special caring, friendship, and continued Hope,
Bonni Hess, mother of ASPS patient Brittany Hess and Cure ASPS International Board member
I am so deeply sorry for your recent ASPS diagnosis and for the numbing shock, deep pain, and immense fear which I know that you and your family must be experiencing right now. I am grateful that you found your way to our Web site so quickly and that you have reached out to the ASPS Community for help and support on your journey with this extremely rare disease. I am glad that the neurosurgeon was able to successfully resect your largest brain tumor, and am Hopeful that the remaining brain tumors can also be surgically removed or destroyed with Gamma Knife or Cyber Knife treatment, instead of Whole Brain Radiation which can have some concerning long term negative side effects. Do you know what the size and location of the remaining brain mets are? Also, what is the size of the primary tumor in your right calf, is it resectable with good margins, and has surgery been scheduled yet to remove it? I know that you are probably overwhelmed by all that is happening to you right now, but please know that you are not alone in your battle, and that we are all here to help you with shared information and strengthening support. Please take care dear Jessica, keep in touch with the Web site as you are able, and contact me personally at BonniHess@aol.com if you would like to. I will be holding you very close in my heart and my special caring thoughts, and praying for a successful outcome to your upcoming Gamma Knife treatment.
Reaching out with special caring, friendship, and continued Hope,
Bonni Hess, mother of ASPS patient Brittany Hess and Cure ASPS International Board member