Pam experience on Anlotinib trial

[D.ap]

Karl,

I speak for myself ,and I’m speculating for Olga, that we understand that ‘black and white ‘ as it truly is for ASPS and the rarity of what works and what doesn’t .

Clinical trials certainly have their limits , and with the financial contributions , there comes limitations to what’s acceptable to be stay on trials .

Having friends and family who are in the medical field , it’s not an easy decision NOR an easy discussion when and if a patient needs to be released from the trial .

My hope , OUR hope should be for studies and reports to be MORE readily available for all of us to make more informed decisions, for our loved ones care.

We are always here for an ear and or an opinion, as we can so relate to the frustration as well as the joys .
Please let us know privately and or publicly how you all are doing .

Our best wishes and love go with you on Sept 29.

Love ,

[D.ap]

Hello Karl,
Thinking of you and Pam today .
Write when able .
Love,

[D.ap]

Pam’s personal post , link.
https://cureasps.org/forum/viewtopic.php?f=4&t=1323

Pam’s Keytruda and axitinib trial
https://cureasps.org/forum/viewtopic.php?p=10104#p10104