Dear Jen,
I am sorry to be slow in responding to all of your recent posts and thoughtful updated information but our computer was hacked
and we have been having ongoing internet problems that restrict my computer use
. I am so deeply saddened and sorry for all of the pulmonary bleeding, pain, and suffering
that you have been going through and Hope that this finds you now healing and regaining strength. I am personally unfamiliar with the Vandetanib drug that you are planning to begin treatment with once you have recovered from your bleeding, hospitalization, and the flu. Is Vandetanib a Clinical Trial drug and if so, what phase Clinical Trial will you be participating in, is the Vandetanib specifically being used to target ASPS, and has the Vandetanib shown any documented success for ASPS patients thus far? There are so many new TKI type drugs currently being introduced and tested, and Hopefully they will lead to successful treatments for ASPS.
I am so grateful that you had the opportunity to enjoy a European trip to Spain and Italy with your parents and boyfriend, and Hope that the happy memories of your trip will help sustain you through the challenges that your disease have caused since your return. My very best wishes are with you for a positive and productive outcome to your appointment with your oncologist and radiologist tomorrow, and I will be anxiously awaiting your next update on their treatment recommendations. Also, if they haven't already been scheduled, it will be important to schedule your three month brain MRI and annual full body bone scan. In the meantime, take care dear Jen, feel better, and keep in touch as your time and the situation allow.
With special hugs, caring thoughts, healing wishes, love, and continued Hope,
Bonni
