Cure Alveolar Soft Part Sarcoma International (iCureASPS)

A not very much discussed topic however VERY important as our loved ones on systemic treatments are at risk and quite frankly have various degrees of cachexia through out their journeys thru treatments and or cancer progression

http://www.ncbi.nlm.nih.gov/m/pubmed/18 ... 16/related

Dear ASPS Community Friends, We have found that the use of marijuana is very helpful/essential in reducing nausea and stimulating a cancer patient's appetite to help prevent concerning weight loss and/or promote needed weight gain. If cancer caused or treatment related weight loss is a concern, I personally strongly advocate and encourage discussing prescribed marijuana use with the oncologist. With special caring thoughts and continued Hope, Bonni

I wanted to comment on specifically Joshua's weight loss from October 2015 to mid year this year

There is a great article that I posted back in November 2015 that goes over most of the reasons that cancer patience loose weight and how their need to regain weight falls thru the cracks of care

http://www.cureasps.org/forum/viewtopic ... 1215#p9053

We pursued all avenues till we saw success with Joshua's slow but finally successful putting on of weight
We consulted a natural doctor for a look see of Joshua's blood work, a dietician for the weight gain needs and eventually went for a consult for a feeding tub to be used to jump start his appetite . Josh opted to not take advantage of the tub and tried successfully to gain weight by specifically increasing his protein grams to 80 a day.

All the health care folks were instrumental in aiding Josh to gain 10 of the 30 plus lbs he lost over the course of 6 plus months .

Food is as important if not more important to a sarcoma patient than their medicines