Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hi:

My son got operation to remove his back tumor on 1/22/2008.
On 1/26 were told which was ASPS.
As the post operation with margins involved so he went for RT at 2GY between 2/21-2/29 7 times.
For better solution, he went for 2nd opertion for the wild excision with negative margin.
then, he went for RT at 2GY daily between 3/27 to 4/25 21 times owing to narrow negative margin.

As he completed the RT course today, so I got anxiety as to whether the above procedure for his treament is apporpriate, especially, I would like to know to treat the primary tumor if RADICAL SURGERY is a MUST surgery?

If anyone can give me some suggestion.

Thanks.
kathy

Hi Kathy, I see that you are able to post, welcome to the board.
Regarding your question. ASPS rarely reoccurs locally and even narrow margins are usually OK, so your son was treated correctly and for ASPS primaries radical surgery is rarely done - it is not usually makes a sense unless there is a direct bone penetration. It's main danger is high frequency of the distant mets. Was he already staged properly to see if the sarcoma has already spread - he has to get CT scan of the chest, bone scan and brain MRI.

Dear Olga:

Tks for your prompt response.

Docotr arranged for him 3 months X-ray to check lung and Ultrasonic Waves to check Liver whih will be done on end of June. as he explained the lung is best frequent site of metastase.

I got confustion as to what else examination should be included.

rgds,

ps his staging is T1b or T2a, N0M0, so far.

X-rays are not appropriate for scans. He must have an abdominal CT scan and a brain MRI at the least. Many ASPS mets are small enough they will be missed with an X-ray. If God forbid they exist you want to get them while they are small.

Do not bother with a PET scan. My son has hundred's of tumors in his lungs and the PET scan showed nothing.

Scott