Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hello,
I have been looking for a case report that stated that:

A male at age 10 had ASPS in the calf he receved no raidiation nor chemo. NED

Then at age 31 he has lung spread and it was removed. Again no chemo nor radiation. NED

At age 47 one brain met was detected and removed. He is now again NED.

I am wondering if this is a better option if the ASPS can be removed via surgery and only if it canot then try radiation and chemo?
I am trying to make a decision with myself in reference to just doing surgerys because it seems that after seven months aprox there has been no changes.

Also, this page would be a nice adition to this topic if found.

I cant find this web report If anyone can help me find this information i would realy apreciate the help.
I am having computer problems and i cant copy nor paist and my web is crawling slow

In healing hopes and light!

Amanda R

Alveolar soft part sarcoma: an unusually long interval between presentation and brain metastasis.
http://www.ncbi.nlm.nih.gov/pubmed/8253458
Department of Surgery, University of Colorado Health Sciences Center, Denver 80262.

While alveolar soft part sarcoma is an uncommon soft tissue tumor known for late metastases to lung, bone, and brain, and interval of 33 years between primary presentation and development of brain metastasis has not been described. We document a patient with a removal of an alveolar soft part sarcoma from the pectoralis major muscle at the age of 10 years, a lung metastasis at the age of 31 years, and brain and renal masses at the age of 43 years. The patient received surgical resections each time, but never radiotherapy or chemotherapy. He is currently alive and well. Immunohistochemistry, karyotypic analysis, flow cytometry, and gene expression were analyzed on primary tumor and established cell cultures in the hopes of further elucidating the histogenesis of this unusual neoplasm.

my comment - in my personal opinion this is the case of an extremely slow growing ASPS with the limited number of the metastasis that were feasible to completely resect, so no chemotherapy approach is totally good for that as it would have not worked anyways.

Hello Olga,
You are fast!
Thank you so much!

Amanda R