ASPS resonding well to MAID regimen/Tok case
Posted: Fri Feb 08, 2013 2:12 pm
There is a new case we have now where an ASPS patient's lung mets respond very dramatically to a traditional chemotherapy so it looks like in some cases ASPS might be much less chemoresistant than it is commonly assumed. The report is here:
http://www.cureasps.org/forum/viewtopic ... 5&start=45
and kudos to the MarietjievdMerwe, patient's sister for alerting us and making a copy of an actual report to share it here as it provides more weight to an anecdotal evidence we share here.
Their latest update was from Nov 20, 2012 and I copy it here:
Re: Tok from South Africa - Dx around 2004
Post by MarietjievdMerwe ยป Tue Nov 20, 2012 12:39 am
"Good morning all ASPS friends,
News on brother Tok is that he had his CT yesterday and it is all GOOD NEWS!!!
Of the 8 mets left in the lungs the scan showed the following: Five mets not demonstratable, not measurable, vague not measurable, not visible x2. The other three are scar tissue, previously 5mm and 4mm and now both are more or less 2mm each!
Cavity right mid lobe has almost completely resolved.
Dr Cohen only wants to see him in three month's time and doesn't consider a CT but just a chest x-ray.
He is looking so good with hair as well as beard growing again. Not too sure about the beard though...
Our family are just so Thankful for this Blessing and are over the moon with joy, as you can imagine.
I will keep in touch.
Kind regards to all.
Marietjie."
So as of now he is having an incomplete response to the MAID (Mesna, Doxorubicin, Dacarbazine and Ifosfamide) regimen, it is unknown now if the response is durable and I am planning to update this topic as the new data comes in.
http://www.cureasps.org/forum/viewtopic ... 5&start=45
and kudos to the MarietjievdMerwe, patient's sister for alerting us and making a copy of an actual report to share it here as it provides more weight to an anecdotal evidence we share here.
Their latest update was from Nov 20, 2012 and I copy it here:
Re: Tok from South Africa - Dx around 2004
Post by MarietjievdMerwe ยป Tue Nov 20, 2012 12:39 am
"Good morning all ASPS friends,
News on brother Tok is that he had his CT yesterday and it is all GOOD NEWS!!!
Of the 8 mets left in the lungs the scan showed the following: Five mets not demonstratable, not measurable, vague not measurable, not visible x2. The other three are scar tissue, previously 5mm and 4mm and now both are more or less 2mm each!
Cavity right mid lobe has almost completely resolved.
Dr Cohen only wants to see him in three month's time and doesn't consider a CT but just a chest x-ray.
He is looking so good with hair as well as beard growing again.
Not too sure about the beard though... Our family are just so Thankful for this Blessing and are over the moon with joy, as you can imagine.
I will keep in touch.
Kind regards to all.
Marietjie."
So as of now he is having an incomplete response to the MAID (Mesna, Doxorubicin, Dacarbazine and Ifosfamide) regimen, it is unknown now if the response is durable and I am planning to update this topic as the new data comes in.