How to request a brain MRI
Posted: Mon May 07, 2012 12:08 am
To have a brain MRI is very important especially when there are already lung metastases present.
We've had a number of people die early because of brain mets which are otherwise very treatable - we also have number of people who had their brain mets successfully treated when found when still small. Surgery for ASPS brain mets and recently different types of radiosurgery (Gamma Knife, Cyber Knife, Novalis) were able to provide an excellent local control.
There are some supportive articles that you can print out and discuss with an oncologist:
1.Brain metastases in musculoskeletal sarcomas.
http://www.ncbi.nlm.nih.gov/pubmed/10379335
"Patients with alveolar soft part sarcoma, Ewing's sarcoma, rhabdomyosarcoma and pulmonary metastases have a high risk of brain metastasis."
2.Sarcoma metastatic to the brain: a series of 35 cases and considerations from 27 years of experience.
http://www.ncbi.nlm.nih.gov/pubmed/20039192
"he authors conclude that surgery is more effective in treating selected patients with sarcoma metastatic to the brain, and that patients with metastasis from ASPS have good prognosis when submitted to surgical treatment."
3. Clinical presentation, treatment, and outcome of alveolar soft part sarcoma in children, adolescents, and young adults.
http://www.ncbi.nlm.nih.gov/pubmed/16410131
''Metastatic sites included lymph nodes, lung, and brain."
Good luck.
We've had a number of people die early because of brain mets which are otherwise very treatable - we also have number of people who had their brain mets successfully treated when found when still small. Surgery for ASPS brain mets and recently different types of radiosurgery (Gamma Knife, Cyber Knife, Novalis) were able to provide an excellent local control.
There are some supportive articles that you can print out and discuss with an oncologist:
1.Brain metastases in musculoskeletal sarcomas.
http://www.ncbi.nlm.nih.gov/pubmed/10379335
"Patients with alveolar soft part sarcoma, Ewing's sarcoma, rhabdomyosarcoma and pulmonary metastases have a high risk of brain metastasis."
2.Sarcoma metastatic to the brain: a series of 35 cases and considerations from 27 years of experience.
http://www.ncbi.nlm.nih.gov/pubmed/20039192
"he authors conclude that surgery is more effective in treating selected patients with sarcoma metastatic to the brain, and that patients with metastasis from ASPS have good prognosis when submitted to surgical treatment."
3. Clinical presentation, treatment, and outcome of alveolar soft part sarcoma in children, adolescents, and young adults.
http://www.ncbi.nlm.nih.gov/pubmed/16410131
''Metastatic sites included lymph nodes, lung, and brain."
Good luck.