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Patients who have no evidence of disease (NED) or stable for decades
Topics: 11

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82 Posts

Last post Complete Response to Dual Imm…
by Johannes View the latest post
Wed May 06, 2020 8:44 am
Rest In Peace
Those who lost their battle with ASPS
Topics: 35

35 Topics

3699 Posts

Last post Re: Tom from Pennsylvania - D…
by D.ap View the latest post
Fri Sep 17, 2021 5:23 am

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ATTENTION ALL PD-1 patients: 5x higher response rates reported on a HIGH FIBER DIET and more lifestyle things

Last post by jcs2007 « Fri Sep 03, 2021 7:12 pm
Posted in Guest Book
Replies: 11
by Ivan » Sun Mar 03, 2019 12:26 am » in Guest Book

11 Replies

837414 Views

Last post by jcs2007
Fri Sep 03, 2021 7:12 pm
The Comprehensive ASPS Scan Schedule & Discussion + Advice

Last post by D.ap « Sat Nov 09, 2019 9:22 pm
Posted in Guest Book
Replies: 51
by Ivan » Tue Aug 20, 2013 10:57 pm » in Guest Book
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51 Replies

2250558 Views

Last post by D.ap
Sat Nov 09, 2019 9:22 pm

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17 yr old daughter from Alberta - Dx July 2017

Last post by gray12 « Fri Dec 01, 2017 12:02 pm
Replies: 25
by gray12 » Tue Aug 01, 2017 12:25 pm
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25 Replies

33484 Views

Last post by gray12
Fri Dec 01, 2017 12:02 pm
Alice from UK - diagnosed August 2017 aged 4

Last post by Bonni Hess « Thu Nov 30, 2017 1:51 pm
Replies: 17
by stuartt » Sun Nov 26, 2017 1:33 am
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17 Replies

12089 Views

Last post by Bonni Hess
Thu Nov 30, 2017 1:51 pm
Bence, 9years old, from Phillipines

Last post by Ivan « Sun Nov 26, 2017 4:36 pm
Replies: 29
by bernard » Fri Sep 23, 2016 4:20 pm
1

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29 Replies

24103 Views

Last post by Ivan
Sun Nov 26, 2017 4:36 pm
Elisa - Dx 2010

Last post by Olga « Thu Nov 02, 2017 3:03 pm
Replies: 20
by Johannes » Sat Feb 13, 2010 8:07 am
1

2
20 Replies

18929 Views

Last post by Olga
Thu Nov 02, 2017 3:03 pm
Joe from Michigan - Dx 2015 at 12 yrs old

Last post by D.ap « Mon Sep 18, 2017 6:28 pm
Replies: 10
by Bridget&Joe_6402 » Sat Nov 07, 2015 11:03 pm

10 Replies

9486 Views

Last post by D.ap
Mon Sep 18, 2017 6:28 pm
Jawad from Pakistan - Dx 2010

Last post by Sarah Ti « Fri Jul 07, 2017 12:42 am
Replies: 26
by fawad2168 » Sun Sep 05, 2010 1:33 pm
1

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26 Replies

22846 Views

Last post by Sarah Ti
Fri Jul 07, 2017 12:42 am
Sean from Pennsylvania - Dx 2003

Last post by D.ap « Sat Jun 24, 2017 6:08 am
Replies: 46
by Elaine Anderson » Wed Aug 30, 2006 7:35 am
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46 Replies

60575 Views

Last post by D.ap
Sat Jun 24, 2017 6:08 am
15 year old ASPS patient from Denver CO - Dx 2013

Last post by D.ap « Sun Jun 11, 2017 3:35 pm
Replies: 64
by Bonni Hess » Wed Aug 20, 2014 10:30 pm
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64 Replies

52519 Views

Last post by D.ap
Sun Jun 11, 2017 3:35 pm
Josh from Kansas - Dx Sep 2012

Last post by D.ap « Mon May 29, 2017 8:20 am
Replies: 199
by Josh » Mon Nov 12, 2012 11:30 pm
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199 Replies

167281 Views

Last post by D.ap
Mon May 29, 2017 8:20 am
Kat's daughter from Australia - Dx Jul 2013 at 7 yrs old

Last post by Kat « Tue Feb 21, 2017 9:56 pm
Replies: 115
by Kat » Thu Sep 05, 2013 9:01 pm
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115 Replies

93025 Views

Last post by Kat
Tue Feb 21, 2017 9:56 pm
Alexander from Russia - Dx. Feb 2014

Last post by D.ap « Fri Jan 06, 2017 5:12 pm
Replies: 69
by alexander » Tue Oct 07, 2014 1:41 am
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69 Replies

50838 Views

Last post by D.ap
Fri Jan 06, 2017 5:12 pm
Don from the Philippines, diagnosed May 2012

Last post by Bonni Hess « Sun Oct 02, 2016 1:49 pm
Replies: 8
by Don » Tue Sep 25, 2012 11:52 pm

8 Replies

9468 Views

Last post by Bonni Hess
Sun Oct 02, 2016 1:49 pm
Forums and website back online

Last post by JolieS « Wed Mar 30, 2016 6:56 pm
Replies: 3
by Ivan » Tue Mar 29, 2016 9:44 am

3 Replies

4736 Views

Last post by JolieS
Wed Mar 30, 2016 6:56 pm
Meng from China-Dx 2008 (PD-1 therapy)

Last post by rachelve « Wed Jan 13, 2016 2:11 am
Replies: 12
by Lisa » Sat Nov 28, 2015 12:13 am

12 Replies

10908 Views

Last post by rachelve
Wed Jan 13, 2016 2:11 am
Kristi, diagnosed October 31, 2014

Last post by D.ap « Sat Nov 28, 2015 4:50 pm
Replies: 7
by Kristi » Sun Nov 22, 2015 5:20 pm

7 Replies

6832 Views

Last post by D.ap
Sat Nov 28, 2015 4:50 pm
Lili from China-DX May 2012

Last post by D.ap « Mon Nov 09, 2015 9:42 am
Replies: 16
by zhoujuhua » Thu Oct 29, 2015 3:14 am
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16 Replies

12760 Views

Last post by D.ap
Mon Nov 09, 2015 9:42 am
Lisa From China - Dx 2014

Last post by Vega343 « Mon Sep 21, 2015 5:56 pm
Replies: 18
by Lisa » Sat Feb 07, 2015 8:57 am
1

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18 Replies

14825 Views

Last post by Vega343
Mon Sep 21, 2015 5:56 pm
KJ from Utah - Dx Aug 2013 at 6 years old

Last post by Vega343 « Wed Sep 02, 2015 9:39 pm
Replies: 29
by LParsons » Mon Sep 09, 2013 4:27 pm
1

2
29 Replies

25201 Views

Last post by Vega343
Wed Sep 02, 2015 9:39 pm
Jo from Perth Australia - Dx 2011

Last post by Bonni Hess « Sat Apr 25, 2015 3:45 pm
Replies: 27
by Mel&Jo » Tue May 03, 2011 6:50 pm
1

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27 Replies

26679 Views

Last post by Bonni Hess
Sat Apr 25, 2015 3:45 pm
LEE From China - Dx Aug 2014

Last post by Olga « Sat Apr 11, 2015 9:42 am
Replies: 17
by ssnc » Sat Mar 28, 2015 8:56 pm
1

2
17 Replies

14692 Views

Last post by Olga
Sat Apr 11, 2015 9:42 am
Amanda R :) from California - Dx 2009 - RIP March 2015

Last post by D.ap « Thu Feb 06, 2020 7:49 pm
Replies: 653
by Amanda » Fri Mar 06, 2009 4:04 pm
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653 Replies

427532 Views

Last post by D.ap
Thu Feb 06, 2020 7:49 pm
Martha from Seattle - Dx Nov 2012

Last post by Bonni Hess « Tue Mar 24, 2015 1:30 pm
Replies: 2
by martha_se » Tue Mar 24, 2015 10:16 am

2 Replies

4117 Views

Last post by Bonni Hess
Tue Mar 24, 2015 1:30 pm
Tok from South Africa - Dx around 2004

Last post by Bonni Hess « Thu Mar 19, 2015 12:03 pm
Replies: 231
by MarietjievdMerwe » Mon Apr 16, 2012 6:38 am
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231 Replies

160010 Views

Last post by Bonni Hess
Thu Mar 19, 2015 12:03 pm
Nina from London - diagnosed in 2013

Last post by Bonni Hess « Thu Feb 05, 2015 1:58 pm
Replies: 4
by NinaMic » Wed Jan 21, 2015 4:47 am

4 Replies

5135 Views

Last post by Bonni Hess
Thu Feb 05, 2015 1:58 pm
Brian from VA - Dx June 2012

Last post by D.ap « Wed Jan 21, 2015 10:35 am
Replies: 27
by BrianB » Thu Jan 03, 2013 2:15 pm
1

2
27 Replies

27161 Views

Last post by D.ap
Wed Jan 21, 2015 10:35 am
Kevin from California, US (Dx Feb 2012) - RIP Oct 17, 2014

Last post by D.ap « Tue May 05, 2020 8:43 pm
Replies: 247
by wangcns » Tue Jun 05, 2012 8:44 am
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17
247 Replies

238351 Views

Last post by D.ap
Tue May 05, 2020 8:43 pm
Bharat from India, Dx October 2012

Last post by D.ap « Mon Nov 10, 2014 5:45 pm
Replies: 6
by kandoikk » Thu Feb 28, 2013 1:49 am

6 Replies

6378 Views

Last post by D.ap
Mon Nov 10, 2014 5:45 pm
Rad30 from UK

Last post by Bonni Hess « Thu Oct 23, 2014 10:19 am
Replies: 2
by Rad30 » Wed Oct 22, 2014 2:52 pm

2 Replies

4209 Views

Last post by Bonni Hess
Thu Oct 23, 2014 10:19 am
Amanda from New Zealand - Dx 2014 @ 46 yrs of age

Last post by Bonni Hess « Fri Sep 12, 2014 10:23 am
Replies: 20
by Amans » Mon Aug 25, 2014 1:31 pm
1

2
20 Replies

16018 Views

Last post by Bonni Hess
Fri Sep 12, 2014 10:23 am
Katrina Palmer from uk

Last post by Bonni Hess « Sun Feb 11, 2018 12:43 pm
Replies: 12
by Katrinauk » Tue Dec 27, 2011 8:21 pm

12 Replies

22635 Views

Last post by Bonni Hess
Sun Feb 11, 2018 12:43 pm
Chelsea from Florida

Last post by jcs2007 « Fri Aug 01, 2014 5:39 pm
Replies: 8
by mrsp&chelc » Tue May 20, 2014 12:00 pm

8 Replies

7452 Views

Last post by jcs2007
Fri Aug 01, 2014 5:39 pm
Lei from Serbia - Dx 2010 - RIP June 2014

Last post by Olga « Mon Jul 07, 2014 9:29 am
Replies: 13
by tparoski » Sun May 30, 2010 3:25 pm

13 Replies

25774 Views

Last post by Olga
Mon Jul 07, 2014 9:29 am
Anthony from Oregon

Last post by D.ap « Thu Mar 03, 2016 5:07 am
Replies: 23
by argonaut » Wed Jan 21, 2009 1:17 am
1

2
23 Replies

43306 Views

Last post by D.ap
Thu Mar 03, 2016 5:07 am
Brinley from Montana - Dx June 2012 at age 2

Last post by Bonni Hess « Wed May 07, 2014 9:07 am
Replies: 42
by babbittgirl » Tue Jul 31, 2012 10:06 pm
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42 Replies

35476 Views

Last post by Bonni Hess
Wed May 07, 2014 9:07 am
Ola from Hawaii. Dx July2012

Last post by D.ap « Sat Mar 01, 2014 1:07 pm
Replies: 26
by KeOlaK. » Wed Sep 05, 2012 11:06 am
1

2
26 Replies

24971 Views

Last post by D.ap
Sat Mar 01, 2014 1:07 pm
Engels Suriel from Rhode Island - Dx 2011

Last post by D.ap « Fri Feb 28, 2014 8:21 pm
Replies: 20
by Engels_suriel » Wed Feb 19, 2014 12:54 pm
1

2
20 Replies

14839 Views

Last post by D.ap
Fri Feb 28, 2014 8:21 pm
Todd from Wisconsin - Dx 2005

Last post by Todd's mom « Fri Feb 07, 2014 1:58 pm
Replies: 27
by Todd's mom » Fri Nov 08, 2013 9:06 am
1

2
27 Replies

21756 Views

Last post by Todd's mom
Fri Feb 07, 2014 1:58 pm
Karen Imm - Dx 2000

Last post by Bonni Hess « Mon Jan 13, 2014 9:54 am
Replies: 14
by Karen Imm » Wed Dec 20, 2006 3:11 pm

14 Replies

15714 Views

Last post by Bonni Hess
Mon Jan 13, 2014 9:54 am
Amanda M from Canada - Dx 2001

Last post by Olga « Tue Dec 24, 2013 1:07 am
Replies: 8
by janette minderlein » Sat Nov 17, 2007 7:05 pm

8 Replies

13395 Views

Last post by Olga
Tue Dec 24, 2013 1:07 am
Cory from Ohio - Dx July 2012 - RIP Sep 06 2013

Last post by D.ap « Sun Jun 15, 2014 7:22 pm
Replies: 37
by Cory from OHIO » Thu Feb 21, 2013 8:49 am
1

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3
37 Replies

62385 Views

Last post by D.ap
Sun Jun 15, 2014 7:22 pm
Xenia from Taiwan - Dx Sep 2013

Last post by D.ap « Fri Oct 18, 2013 7:07 am
Replies: 11
by kajer » Fri Oct 04, 2013 2:10 am

11 Replies

10836 Views

Last post by D.ap
Fri Oct 18, 2013 7:07 am
Shelby Hollar from USA Dx 2009

Last post by D.ap « Sun Oct 13, 2013 10:28 am
Replies: 15
by Tshollar289 » Tue Jul 02, 2013 7:12 pm
1

2
15 Replies

15908 Views

Last post by D.ap
Sun Oct 13, 2013 10:28 am
Jessie From China -Dx Oct 2012

Last post by D.ap « Wed Sep 11, 2013 9:05 am
Replies: 3
by lee » Mon Dec 31, 2012 10:54 pm

3 Replies

6752 Views

Last post by D.ap
Wed Sep 11, 2013 9:05 am
Naaila from UK

Last post by Bonni Hess « Thu Aug 29, 2013 8:31 pm
Replies: 13
by HaqStar » Mon Jan 21, 2013 2:26 pm

13 Replies

12265 Views

Last post by Bonni Hess
Thu Aug 29, 2013 8:31 pm
Martin from the Netherlands - Dx 2008 - NED

Last post by D.ap « Tue Aug 06, 2013 1:54 pm
Replies: 10
by Olga » Thu Mar 19, 2009 1:29 pm

10 Replies

11968 Views

Last post by D.ap
Tue Aug 06, 2013 1:54 pm
Matt from Florida - Dx 2009 - RIP June 8 2013

Last post by wendik « Tue Aug 05, 2014 10:25 am
Replies: 24
by wendik » Sat Dec 26, 2009 6:44 pm
1

2
24 Replies

44320 Views

Last post by wendik
Tue Aug 05, 2014 10:25 am
Jordanne from Washington - Dx 2009

Last post by D.ap « Mon Jul 08, 2013 4:15 pm
Replies: 32
by DottyW » Sun Oct 10, 2010 4:53 pm
1

2

3
32 Replies

59975 Views

Last post by D.ap
Mon Jul 08, 2013 4:15 pm
Charity from Ontario - Dx 2002 - MIA

Last post by Amanda « Fri May 10, 2013 9:15 pm
Replies: 35
by Charity » Sun Aug 06, 2006 10:11 pm
1

2

3
35 Replies

67575 Views

Last post by Amanda
Fri May 10, 2013 9:15 pm
Allison from New Jersey - Dx Apr 2011

Last post by D.ap « Tue Mar 19, 2013 5:26 pm
Replies: 23
by -allison- » Wed Apr 13, 2011 1:38 am
1

2
23 Replies

23453 Views

Last post by D.ap
Tue Mar 19, 2013 5:26 pm
Finn from Finland - Dx 2011

Last post by jcs2007 « Sat Feb 16, 2013 7:59 am
Replies: 12
by Finn » Thu Jul 07, 2011 12:53 pm

12 Replies

11180 Views

Last post by jcs2007
Sat Feb 16, 2013 7:59 am

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