Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Brain tumor symptoms can vary. Obviously it depends on the location. My 2 were in my temporal lobe. I had been complaining of dizziness & steady loss of conciousness ( aware of surroundings). I complained since 1997 of my deteriorating condition. my peripheral vision was also deteriorating since...

Thanks Olga, Very good article. Great info. Nice to know the periosteum is acceptable as a margin . So far I have been fortunate , as my tumors have been encapsulated ( or is this the case with all ASPS tumors ?) . Even less reason to justify an overly wide margin. Quality of life is important to me.

My primary tumor in 1998 was in my left leg. Upper outer thigh. 2002 metastasised to left lung. 2004 " Brain ( temporal lobe) 2005 2nd Brain surgery. I now have a 13 cm metastasis in my right leg hamstring. I lost 55 pounds in last 14 months. So no telling how long this one had been there . Bio...

It's real nice to see this very important website is going strong. I am very grateful to all of those people who put all their time & effort into making this work. When I was first diagnosed in 1998 there was not a single website for ASPS patients. Actually we could barely even find any info on ...