Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hi Ivan and All,
In PET scan found reactive cervical lymph node . I am worry if this concern of asps or was from after Pfizer vaccination. He got 3 weeks (sep 13,2021) vaccination date 2nd shot and then PET (oct 7,2021).

Pls let me know if any suggestions or how to proceed.

Thanks so much.

Hi Ivan, There was Keratosis Pilaris at his posterior coccygeal region and already excision. His PET scan follow up result as of today is no changed of 0.5 cm in his lung and the report said it was perifissural nodule. Next week he will meet his onc for review the result. He already received Pfizer ...

Hi Olga,
Thanks so much for quick response.

Hi Olga and all, May I have your suggestion about Covid Vaccination. My son is now 17 years old and will turn to 18 in Dec 2021. Shall he has Pfizer Covid vaccine, Moderna or waiting Aztrazenica when he is 18. I also consult to his doctor but need your opinion or experience. Could you please advise....

Hi Ap. The Onc just suggests PET and Mri. No bone scan or CT. We’ve asked for other scans but they confirmed currently scans are enough. In lung PET 2020 shown that no any met and also no met in 2018, 2019 compare to 2017 PET result and CT lung. They did MRI abdomen that found 2.7 cm at post coccyge...

Hi Olga,
The Oncology, the surgeon, and the radiation oncology had a meeting to verify MRI scan result again, they said that this is not met and no recurrence. They have recommend to measure in the next 6 months, no need any treatment. Could you suggest how to proceed?
Again thank you so much.

Hi Oga,
After surgery, do we need RT? Shall we have any systematic treatment?
Or only surgery? And scan monitoring?.
Many thanks.

Hi all, After PET detected increasing FDG and again done MRI that we found one 2.7 c.m. enhancing lesion at posterior to sacrococcygeal. Other parts of body are clear. The doctor try to done physical check by his hand but didn't find any lumping. So, do we need Biopsy to make sure it is recurrent or...

Hi Debbie, Thank you so much ..and really great to hear your son is healthy .. Hi Olga, The primary 3x3x4 cm was resected and Rt by 6 months 2016 before chemo. Before Pet scan , we done lung Ct which they were reduced in size from 0.4 cm to 0.1 cm , no new met and other scan shown clear and PET show...

Hi Olga,Bonni,Nhi, Martin, and all.. For updating my son that he was treated by chemo ; ifosfamide, vincristine, doxorubicin in 2016 Nov to Apri 2017 (6 months) about every 3 weeks total 7 times (3days in hospital). He has serveral scans; ct lung, brain MRI, PET, bone scan, heart echo test, blood te...

Hi everyone, Dr.Drewes/Coswig suggested my son should receive chemo or TKI therapy, we could break of 6 weeks before operation. In progress of cancer disease is a operation after this break possible, but the lung is after chemo not so much elastic and some times they have a small postoperative probl...

Dear everyone, Olga, Nhi, Bonnie! Mikko,Jussi.. Today we just got recommendation from Dr.Drewes, Coswig from my son CT scan that he said the numbers of nodules is not so much and very small. His opinion in my son case is not indicated for LAPM in this moment. He suggest to control & wait in 3 mo...

Hi,

MRI knee is clear (primary tumor) no any problem.

Thanks..

Again thank you very much Olga.. The CD was delivered to Coswig last Firday, Dr.Drewes said that he will review and suggest ASAP. Other Onco in Thailand suggested to start by Sutent and then LAPM at Coswig. Shall we start with Sutent and then Laser? So, we just have 2 ways, which one we shall go? 1....

Hi Olga and all" After consult with Onco and 2nd opinion total 3 of them. 2 of 3 suggested to go Chemo first then evaluate , scan then if can reduce met and or can be surgery. 2 Onco of 3 Onco did not suggested TKI sutent , 1 once suggested Sutent. 1 Onc of 3 Onco suggested start Chemo immediat...