Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Thanks so much Debbie, I am learning so much through this journey. I am in the process of getting all of the info for Dr L in Detroit as well as Dr Rolle. I am hopeful for a miracle or even a few more years with my wife and kids. I am so thank full for everyone on this forum and I pray for your fami...

Hi. Yes, it was a full resection of the primary which was approx 10 X 8cm located just under my rib cage on my left side. Post op they told me that out of 7 lymph nodes 1 local showed malignancy. From what Oncology has told me there seems to be 3 mets approx 1 cm and 1 slightly more then 1 cm. I am ...

Hi Olga and Debbie Thank you so much for your support, it has been much harder this time around, when I had my first ASPS finding I was only 18 so a lot more fearless. I am very interested in Dr Rolle to see if he can help me, I live in Toronto Canada. Everyone keeps telling me to go to the States b...

I am new to this forum and I must say that its so therapeutic to just have an outlet to share ideas and experiences. I am not new to ASPS as I was first diagnosed in 1988 with a spinal tumour that turned out to be asps. I was 18 at the time, getting ready for fresh week and leaving home for a great ...