Cure Alveolar Soft Part Sarcoma International (iCureASPS)

All, Thanks so much for your kind words. Is there a facilitator that gathers medical information? if so, there are some additional twists and turns on her journey that I would be happy to share by PM and that could, in turn, be shared with the larger group on an anonymous basis. Yes, Siofra's bone m...

Síofra passed away at home 2 months ago, almost 6 years after receiving her diagnosis of ASPS; an amazing little girl who grew into a woman on her journey with this disease. I have no doubt but she is an angel now. She had a 7cm primary tumour in her left calf with lung mets across both lungs upon p...