Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Dear all! So, I’ve been on the Keytruda+Axitinib clinical trial (NCT02636725, https://clinicaltrials.gov/ct2/show/NCT02636725) for one and a half years (since February, 2018). The results very positive: the mets in lungs and in the liver reduced significantly, especially in lungs (there was 50 mets,...

Hello everyone, Thank you so much for sharing your ideas and providing valuable advices. Dec 2017. High-dose chemotherapy with Doxorubicin (60 mg / m2, 105 mg per day, 1 day), ifosfamide (2000 mg / m2, 18,000 mg per day) with Mesna (2000 mg / m2, 18000 mg per day) iv 5 days. Jan 2018. CT scan showed...

Thanks a lot for quick reply and sharing ideas! After additional discussion with my doctor, the decision had been made. Tomorrow I’ll go to high-doze chemotherapy with Doxorubicin and ifosfamide because: - Cyberknife refused to operate liver as more than two big metastases in different places. - Cry...

Hello team! Thanks a lot to everyone who shares their stories and ideas on this forum. I want to share my story and ask for a piece of advice from the community. My name is Daria, I was born in 1980 in Siberia region (middle of Russia). My ASPS come in my life in 2012 when I was pregnant with my sec...