Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Lynette, To recap: 1) subsequent radical resection showed everything within Dr. Littrup's cryo ball to be completely dead. 2) only that 1cm "lesion", which had a lot of T-Cells, also contained microscopic (no macroscopic) islands of tumor This is what we feel was happening at the cryo peri...

Lynette (and Debbie), We went to germany (Thomas Nesselhut) for unprimed DCs - the idea being the unprimed immature DCs, if injected in strategic spots near the affected area, can pick up bits of the tumor and go on to train the T-Cells. To make an already complicated history more complicated, Rene ...

Lynette, My name is Ed. My wife Rene had putative synovial sarcoma mets ablated by Dr. Littrup. Just want to chime in on the immunotherapies. We specifically chose cryoablation, even of primary tumor, in order to harness immune effect. After cryoablation of recurrence of her primary (infratemporal f...

Dear Amanda,

We are so sorry to know of your father's passing. We wish you strength and comfort during this very difficult time.

Rene & Ed

Hi Amanda, This is Ed's wife, Rene, writing. I'm so sorry to hear about all that you're going through. I had a recurrent tumor right next to my right jaw bone. In order to picture where it is, imagine the right jaw bone as a "L" shape. The jaw joint is right at the top of the "L"...

Hi Amanda My name is Ed. I'm sorry to hear what you're going through. I don't frequent this board much but Olga shot me an email and asked me to comment on cryo of the jaw. My wife has had a soft tissue infratemporal fossa cryoablation by Dr. Littrup in 2011. Her tumor was pressing agains the jawbon...

Hello there, My name is Ed. My wife, Rene, is a synovial sarcoma pt who just had her 2nd cryo w Dr. Aoun & Dr. Littrup at Karmanos, Detroit. I thought I would post to add our experience with cryo of a juxta-pleural lesion. This was a 1cm cyst that started filling in in the beginning of 2012. Her...