Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Aloha all. This is Keola coming from the island of Oahu. Well the 2 month scan this last month showed that my the tumors had grown most notably the primary tumor in my left thigh. So after 10 months of stability, the dream came to an end. The initial plan was to continue taking Sunitinib which may w...

Aloha everybody, Thank you Bonnie and Olga for all your help and detailed knowledge. I really do appreciate everything that your telling me and take it into account. I have always wanted to remove the primary first, but had no idea how or who. I had just had a CT scan done and sent to the NCI in MD ...

Dear Bonnie, thank you sooo much for helping me find a sarcoma specialist close by. I was nervous at first, but because ASPS is resistant to traditional chemo and radiation i hope to have this tumor in my thigh removed as soon as possible. Ill try and get in contact with Dr. Fritz Eiber and hopefull...

Aloha again, My doctors and team here in Hawaii are supposed to be the best cancer doctors here in the state, having helped hundreds of people. I know that this cancer is extremely rare however, and have been doing research myself as well. I will push my doctors to to a bone scan as well and as for ...

Aloha pumehana everybody, Thank you to trixxi and Bonnie for your love and support. Im glad to hear that many people are on the same type of journey that i am. I forgot to mention that i did do an MRI of the brain which came out negative, a CT of the pelvic and stomach area with contrast which all s...

Aloha everybody, My name is Keola and I am 19 years old from Hawaii. I am new to this website and was nervous at first. I had recently been dx with ASPS by my doctors here and it is definitely a different journey for everyone, so heres mine: in 2002, i was 9 y/o at the time, i went in to see my pedi...