Cure Alveolar Soft Part Sarcoma International (iCureASPS)

And the last post was from our dear Amanda. :( There is no news on Tok. He sold his house and is living with our youngest brother on a farm. I spoke to him this morning and he sounded in very good spirits. HE IS NOT RECEIVING ANY TREATMENT AT THE MOMENT. I presume he will go for a blood test in the ...

Bonni,
It is with much joy and happiness that I read your post on Brittany just now!

Your daughter is a trooper.

Much love and a special hug to Brittany.

Marietjie.

It is just so very very sad. :( Dearest, sweetest Amanda who always put other's pain before her own. There was a smiley face in all her posts and that is what I will remember forever. Amanda who wanted us to get Tok to the USA for treatment. Sweetest Amanda who wanted to contact Drs without borders ...

Dear Amanda,

Get better soon. We were very worried about you and sending you lots of hugs.

Agree with Debbie that we are missing your "smile" on the forum.

Thank you Bonni.

Much love.

Marietjie.

Dear Bonni and Everybody! Baby Brother Tok is at home! He is in very good spirits and joking about his non-excisting calve muscles. :) He is however, lining up an excercise regime of some sorts, which is fantastic to hear him planning on getting back to his old self. He lost about 8kg, which is also...

Bonni,

Fantastic news! How wonderful to be able to share this awesome news with you.

Love.
Marietjie.

Dear Amanda,
So so so sorry to hear about your pain.
Hugs.
Marietjie.

Goodmorning Everybody, I spoke to Tok yesterday! He is off the ventilator and out of ICU. :) His voice is very hoarse, but that is understandably. He was still complaining about the pain in his hand. :( Of course this is ghostpains and I am sure this will past eventually. He has to stay in hospital ...

Hi Everybody, Tok's surgery didn't go as planned and he was in serious trouble, having to undergo surgery for several hours. He is stable at the moment, but still on a ventilator and still in ICU where he is recovering. We spoke to the hospital staff yesterday as well as this morning and he is awake...

Dear Bonni, Just a quick update: please believe me...still no operation as yet. :( I spoke to him just now and he is still in VERY good spirit. He even made jokes about staff asking him what he wants to do with the amputated arm (really ) :shock: It seems as if he WILL be on Friday's theatre list. A...

Agree with Debbie! Way to go, Ivan!

Dear Josh,

All the best of luck to you! I will keep you in my heart. And also: LOVE your attitude!

Kind regards.
Marietjie.

Dear Amanda,

Just want to reach out to you and give a HUGE hug! I hope and pray that you will be on the road to a excellent recovery. Enjoy your visit and have fun, heaven knows, you deserve it.

Lots of love.
Marietjie.

Dear Kathy, Bonni and Debbie, Thank you for your good wishes. This is always welcome and very much appreciated. As expected, the operation was postponed till Tuesday. Tok will stay in hospital, which is much better as he will be monitored closely and his arm will be cleaned on a daily basis by the m...

I meant ECG....EKG in Afrikaans...