Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hello Kathy :), I'm pretty new here, however I just finished reading all of your posts about Tom's fight with ASPS. I am trying to familiarize myself with everyone on here, as we are "family" (one of my friends on here says this often)! I'm going to bed now feeling encouraged with the last...

Hello all, I wanted to give everyone an update on my lastest biopsy results-----My oncologist at Duke called week before last to let me know that, yet again, my results are inconclusive. He said that the cytologist in the room did identify 'spindle cells' in the sample, however the sample wasn't lar...

Olga, The hair loss is not at all normal---it is half as thick as it used to be and my receding hairline is so bad I won't wear my hair up anymore. My scalp is so tender I can hardly touch it without it being extremely painful...I'm am wondering if the ovarian cysts are causing some hormone problems...

Hello again everyone and sorry that it has taken so long for me to respond. Olga, as for your questions: 1) I've had multiple MRI's with and w/o contrast (Gadolinium) of my chest, abdomen and pelvis area and also CT's with and without contrast. I've had a transvaginal ultrasound also done since my O...

Hello everyone! I have procrastinated for a while in posting on here, but finally forced myself to do this because I have SO many questions/concerns/etc. and have no one with similar circumstances in which to talk to! I was diagnosed with ASPS in 2005, after having a mass in the (R) side of my pelvi...