Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Dear Hess Family,
We all share the joy over your good news! I loved seeing the picture of you on your travels. Thanks for sharing!
We are well in Tampa.
Ellen

Bonni, I was delighted to read your post.
Olga, Do the staple devices cause distortion on future scans or is the concern with regard to preserving more lung tissue?
Best regards to all, Ellen

One thing to discuss with your surgeon prior to a thoracotomy is the various types of preempitive analgesia (pain prevention) that are available to you. An intercostal nerve block is quite easily done at the end of the procedure by the surgon. A needle ususually reserved for spinal blocks is long en...

Olga, Thank you for your response and insight. I have found your information on the site to be quite valuable. Amelia's surgeon had planned a VATS but the size of her chest with relation to the lesion and the available instruments made thoracoscopic excision of the met impractical. They attempted an...

Hello My name is Ellen and my 8 year old daughter, Amelia, developed a tumor over her left shoulder in January of this year...she had a diagnostic mri, a chest ct scan (that noted a 2mm lesion right upper lobe) and then an ultrasound to determine the vascularity of the mass...The lesion was just und...

Dear Olga, It is so nice to read about your son enjoying good and stable health...I am going to post a summary of my daughter Amelis's case when we return from our oncology appointment in Boston...I have not been to the site in a couple of weeks so I was cheered to read your post and to see the vide...

this is a test.....ellen
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this is a test.....ellen