Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hello everyone, Just fishing around for some feedback. Would an MRI of the thigh WITHOUT contrast show an ASPS tumor? or would it merely present itself as normal tissue? Has anyone had an MRI without contrast and had their tumors shown up? I have a lump in my upper left thigh right above my knee, ca...

Olga, I did send her a message through the user control panel a month ago, I just sent her another today, I am eagerly waiting for her to call me or message me

I sent her a private message two days before I posted this message. I am very "hell bent" on speaking with her on the issue of hormone replacement and if she was able to keep her ovaries

Annika

I really wish Tricia would return my message. I Was diagnosed with ASPS on my cervix as well last year and I have so many questions for her.

Annika

Oh I have no problem doing the CT without contrast. I just need my doc to ok it. I just called them too to request a MRI of my noggin, as well

Sorry Olga, I forgot to mention I did have contrast! It was a chest abdomen and pelvis CT. I am definitely allergic to the contrast material. The Onco wants me to pre-medicate with prednisone and benedryl. I am really trying to find out if a CT is the most accurate to diagnose asps, as the previous ...

Hi everyone, I had a question, but 1st a little history. I am 6 months post op from a total hysterectomy/bso for cervical ASPS. I just saw my oncologist today and was informed I need to have a CT again. After my first one in NOV of last year I had hives for 3 months afterwards. Needless to say I do ...

Yes Olga my CT was chest abdomen and pelvis

well physically radiation, to me at least, does not cause as much harm in the immediate meaning i will probably not get as sick. I did get the full text from the link u sent me and i am grateful i have not seen this one and it is very promising as Cervical ASPS is different somewhat than soft tissue...

Ok so my oncologist is at Rush University Medical center in chicago! He did do a fellowship at Sloan Kettering and has contact with one of the head docs there that is aware of ASPS however, because of the rarity of the sarcoma and the location neither him or the doc at Sloan have encountered this in...

Hi Olga, Yes believe me I have read EVERYTHING about ASPS as well as all the literature online of cervical ASPS but cannot find any infor on the path not having that gene profile ?????? This might help give some insight on treatment afterwards? Who knows but my oncologist wants me to do chemo and ra...

Before my hysterectomy I had a CT scan and a chest x-ray all lymph nodes were free as well as all margins of the uterus

I hope I am posting in the right area. I am 32 years old and female! In October this year I had a hysteroscopy d and c for a polyp in my cervix! A week after surgery my dr called me into the office and the polyp was diagnosed as ASPS I underwent a total hysterectomy on nov 16th! The tumor was only 1...