Cure Alveolar Soft Part Sarcoma International (iCureASPS)

حديث من البخاري : باب الدواء بأبوال الإبل روى البخاري عن أنس أن رهطاً من المدينة قدموا على النبي صلى الله عليه وسلم فقالوا: إنا اجتوينا المدينة فعظمت بطوننا وارتهشت اعضادنا فأمرهم النبي صلى الله عليه وسلم أن يلحقوا براعي الإبل فيشربوا من ألبانها وأبوالها حتى صلحت بطونهم وألوانهم...... ( رواه البخاري...

Dear Olga and Ivan thanks for encouraging me to post. Sorry for the long absence from the forum. In fact I was running here and there in my quest of the best possible treatment available. As you people know that I was fulfilling the criteria to be included in CEDIRANIB trial but unfortunately even t...

Dear All ASPS Forum Friends, Thanks for sharing your valuable input to help guide me regarding the treatment decision. After going through the inclusion criteria in cediranib trial, i think that 2-3 lung lesions qualify for the criteria. I'll also ask Dr Kummar regarding the removal of the primary t...

Dear all Friends I wanted to update and seek advice from you about Jawad's case. I had a discussion with Dr Rolle regarding removal of lung mets. He did not agree to remove them now as there are many tiny mets( around 100) in each lungs. He was of the opinion that jawad should first undergo systemic...

I ve searched about it and it is open in National Institute of Health Clinical Center (CC), 9000 Rockville Pike, Bethesda, Maryland 20892 USA. I ve read about their inclusion/ exclusion criteria & Jawad qualifies for that. Can somebody tell me what should be my next move to get into the trial? S...

Dear 'F' / Olga Thanks for giving contact info of Dr Rolle :D . Infact, I talked to him on telephone and told him briefly about my disease. He was very nice and listened about my disease. He told me to send him a CD of my scans, which i will be sending him soon. With Best Wishes and Regards for all :)

Thaks once again Olga for putting light on the subject. you are so thorough on the subject. I ll go by your advice and read all posts. I ve started working as per your guidelines. i ve sent a detailed mail to Dr Rolle with lab reports and CT Chest images in PDF format refering cureasps forum. I ve a...

Dear Olga and Amanda Greetings 1. I am thanful to you for such a brisk response and giving a deep thought to Jawad's case. 2. I forgot to mention that We live in Pakistan. Sizes of the lung mets are variable, about 04 are in cm the largest one is about 03cm in Rt lower lobe. Rest are in mm ranging f...

Greetings Everybody on icureASPS Forum, First of all i am thankful to all of you especially Olga for doing this great service to the families and patients of ASPS. My introduction: my name is fawad, postgrduate student in internal medicine. My Issue: My younger brother Jawad, also a doctor( postgrad...