Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Jussi´s first ever proBNP value was taken in December 2017 as he started Cediranib. It was high but it soon got lower and in April it was nearly normal but it started to rise again after that. This week´s proBNP value was half of that value in last December The MRI in April was stable the progressio...

GREAT NEWS! So glad to hear this.

I forwarded the articles to Dr. Kononen and sent an email to Pf. Judson.
Thank you!

Does anyone know what are Astra Zeneca´s criteria for giving Cediranib to an ASPS patient? Jussi´s oncologist Dr. Kononen has now received an applying form from Astra Zeneca. Dr. Kononen said that the questions are quite thorough, for instance; how is the diagnose verified ( the gene tests were comp...

MRI.....false results might have something to do with the ossifying mandible after the tumor resection and wisdom teeth extractions.

The Dental Surgeon´s text message was: "NO recurrence or new spread to the mandible, according to the radiology report"

Dr. Kononen told us that Cediranib is approved ( not for ASPS of course) and is available.

Sorry to say but your surgeon´s opinion on laser assisted thoracotomy is not correct.

I asked for the embolization and the surgeon agreed

I´m painfully aware of how things happen with this mandible lesion, so it went like this: 13/4 2017 MRI ( we got the results 21/4 17); no clear progression of the disease, one suspect new brain nodule 1-2 mm, edema in the spongious bone of mandible in the region of d.38 ( wisdom tooth), consult a de...

Fachkrankenhaus Coswig. Dr. Rolle is retired and Dr.Drewes is now doing laser surgeries, his email address is: drewes@fachkrankenhaus-coswig.de

So glad to hear this!

Dear Mandy,

I agree with Debbie. You can send your new CT on CD to Coswig and wait for their answer.
best regards from Finland
mikko

I would wait for Coswig´s opinion. I would not start Sutent or chemo now.

So glad to hear your MRI results!