Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Sandeep had his scans today.There has been increase in the liver and spleen mets.We are very disappointed as he has been taken off cedaranib trial as it was our only hope.He has already been on sutent in the past which did not work.It does not look like there is anything we can try.If anyone else is...

Sandeep had his scans today.There has been increase in the liver and spleen mets.We are very disappointed as he has been taken off cedaranib trial as it was our only hope.He has already been on sutent in the past which did not work.It does not look like there is anything we can try.If anyone else is...

Hi Archana
I am Bharathi Bhandari.My husband sandeep was diagnosed with ASPS in Dec 2008.I gather that Sree is on Cedarinib and wondering how he is getting on.Is there any phone number I can call you on? My Email ID is bharathibhandari@hotmail.com.
Take care

Thanks a million Olga, Amanda and Sree...
Olga you do a great job keeping this site so organised. This site is a source of great info...so keep it up !

Hi everyone I am Sandeep 36yrs, live in Southampton, UK. I was diagnosed with ASPS in Dec 2008. It was discovered after I had chest pain on flight to SF, California..... rushed to ER and to my shock I was told I had multiple lung mets... it was as if I was role playing in the TV drama ER ! Anyway, n...