Search found 2 matches

by Julia
Tue Mar 20, 2007 12:36 pm
Forum: Personal Stories and Updates
Topic: Mona from Germany - Dx 2004 at 3 years old
Replies: 2
Views: 6366

Yes, Olga, we live in Germany. There is only one proton beam institution available in Switzerland (PSI, Villingen), which is able to treat tumor masses in the head of children, who need anesthesia during radiation. Back in 2004 their experience for children of Mona´s age was n=1. Other institutions ...
by Julia
Mon Mar 19, 2007 3:26 am
Forum: Personal Stories and Updates
Topic: Mona from Germany - Dx 2004 at 3 years old
Replies: 2
Views: 6366

Mona from Germany - Dx 2004 at 3 years old

Hi to everybody. We are fighting against ASPS for 3 years now. Here is th story of our personal nightmare: Our daughter Mona was 2 3/4y when she started complaining about headache frequently. March 2004 MRI demonstrated a well-demarcated retrobulbar extraconal vascular tumor in dthe right superomed...

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