Cure Alveolar Soft Part Sarcoma International (iCureASPS)

My single brain met is only 10mm in size and has remained so since diagnosis over 2 yrs ago. it's not causing any symptoms. While it remains stable and have not had any direct treatment to it, my trial options are quite broad. I have been advised not to interfere if things are stable and especially ...

Thanks Bonni for trying to get in touch with me through Olga! I am reasonably ok. Currently waiting for my repeat CT after nearly 4 months off cediranib. I am currently being screened for a new trial here in the UK-at the Royal Marsden hospital, London. This is OSI-027 trial using a PI3 kinase inhib...

Thank you so much Amanda and Bonni for your kind comments!! I will keep you all updated, no worries. I dont know what to say about your advice about surgery to the primary and radiotherapy to the brain lesion. Part of me wants to follow Prof Judson's advice, as its an easy thing to do. Not having an...

Hi everyone, Its been a long while since I last wrote. I have to confess I rarely visit this site, mainly because I fear any unpalatable news that I might come across. May be I should try and atleast contribute my personal experience from time to time. So apologies. I was on Sutent for 14 months, wi...

Hi everyone Greetings. Its been a while since I have posted any comments. So apologies. Just thought it will be useful to add my progress and provide information on how the experts in Marsden, London are managing my condition. Sunitinib has not been very promising so far. Lots of side effects and my...