Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Dear Group, Thank you for your posts and comments, it's nice to be in touch again. In response to the question regarding the size of my primary tumor, I do not remember the precise measurements. I do remember that by the time it was surgically removed the mass had grown rather large. I first noticed...

Dear ASPS community members,
I wanted to check in with an update on my status. I am currently 53 years old. I am in good health and remain symptom free.
Best regards,
Tammy

Dear Olga, I am very happy to hear that Amanda Minderlein is doing so well! How wonderful that her remaining lung mets have regressed. Thank you for your very interesting discussion regarding the sensitivity to chemo of established ASPS lung mets in their grown vascular state vs. small pop up mets. ...

Dear ASPS community members, I wanted to share my experience with ASPS and as one who has overcome this disease. It was 34 years ago this spring that I was diagnosed with ASPS. I am now 47 years old and enjoying very good health. The site of my primary tumor was my right thigh. I was stage IV at dia...