Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Dearest Cindy, Thank you for your thoughtful update and very kind belated Birthday wishes in the midst of all of your ongoing challenges with dear Sam's very courageous ASPS battle. I am so grateful that Sam's 10/20/23 brain and occipital surgery went well, but am very sorry that he developed seizur...

What AWESOME news, and a most precious Christmas gift dear Ivan :) Thank you for updating and sharing the great joy, take care, CELEBRATE, and have a Wonderful, Happy, and Healthy Holiday season and New Year 2024 :) Sharing your VERY GOOD news with greatest joy, warm friendship, love, and continued ...

Dearest Cindy, My Birthday is on the same day as dear Sam's October 20th occipital surgery, and my special Birthday wish is for Sam to have a VERY successful outcome to his surgery, and a speedy recovery and healing as he continues his VERY courageous and challenging ASPS journey. I will be anxiousl...

Dear Nhi, I too am wondering how dear Sam's August 28th scans went, and am holding VERY tight to Hope for VERY GOOD news of treatment success with tumor shrinkage/disappearance and disease stability. I am VERY grateful that you have been tolerating your combination Opdivo/Yervoy treatment so well :)...

Thank you for the encouraging update dear Cindy, and MOST positive thoughts and VERY best wishes fo dear Sam's speedy healing and recovery from his jaw surgery, and a VERY successful response to the Opdivo/Yervoy Imuunotherapy treatment. Holding VERY tight to Hope for VERY GOOD scan results on the 2...

Thank you for your thoughtful update dear Cindy. My heart breaks for dear Sam's continued challenges with this damn disease, and I SO deeply admire his continued courage and perseverance. I am grateful that he has been able to enjoy some of the good things in Life like donuts and ice cream :), but a...

Thank you for your thoughtful detailed update dear Cindy. I Hope that dear Sam will be scheduled to begin the promising Opdivo/Yervoy treatment soon, and am holding VERY tight to Hope that it will be the miracle systemic treatment that he needs to successfully shrink and destroy his multiple mets an...

Thank you for your thoughtful update dear Nhi. I am SO VERY sorry for the increased growth of some of your mets, the new rib met, and your increased pain. You have been on such a challenging roller coaster throughout your ASPS journey, and yet you admirably continue to move forward with your busy Li...

Dear Cindy, I am so deeply saddened and sorry for dear Sam's apparent resistance to his Atezolizumab treatment with increased tumor growth and the reappearance of multiple previously dormant mets, which his doctors don't think is pseudoprogression. I am holding very tight to Hope that he will have a...

Dear Debbie,, Thank you SO much for your continued special concern, caring, and support for our dear Brittany, and for the helpful shared information and resources for her thus far unexplained seizures. VERY thankfully, Brittany's regularly scheduled every 4-6 months chest/abdominal/pelvic/brain/and...

It is with the deepest profound sadness, sorrow, grief, and shock that I read about the devastating loss of dear courageous ASPS Warrior Jen's precious young Life to this cruel and unrelenting disease. I am deeply grateful to dear Jen's loving husband Luke for somehow finding the emotional strength ...

Thank you so much for your thoughtful update and the mostly positive news dear Nhi. I am so grateful and encouraged for your increased mobility and the stabilization of your bone met growth with your Keytruda/Axitinib treatment, but am sorry for your continued concerning lung met growth. We have lea...

Thank you for your kind words of sympathy for the devastating loss of my beloved brother to Covid dear Ivan. I am grateful that you are being Covid safe. Covid is very real and tragically very dangerous especially for those with underlying conditions and compromised immune systems like ASPS patients...

Thank you for sharing this wonderful and VERY good and encouraging news dear Ivan :) Brittany is also on a four month schedule for her chest/abdominal pelvic scans which she just had done yesterday at SCCA in Seattle since she can't go to Edmonton for her Clinical Trial scans due to Covid. She is cu...

Thank you for your very thoughtful message dear Melanie. I Hope that precious Ellie is continuing to do well on her Cediranib treatment, and that she, you, and your Family are all enjoying a wonderful Summer and staying Covid safe. With special appreciation, caring thoughts, healing wishes, and cont...