Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hi Willem, i tried to PM you. I'm located in the Netherlands. You could think about a second opinion from dr. van Coevorden. He is a surgeon and deals with the very few ASPS patients in the Netherlands. He is open to comments from this forum and knows that this board has very deep knowledge about AS...

Hello there,
I'm doing fine overhere.On paper its still Ned.
We are still on the x-ray path after having the the full package the first 24months.
Its a different approach but i'm totally fine with it.
This website is a very good source.
Thank you all for contributing.
All the best
martin

Hello After dx in 2008 i'm on a yearly ct schedule. ASPS is not on my mind every day. I'm checking the boards on a regular bases. march 2008 dx right tigh 4cm no metastases at presentation april 2008 removal primary May 2008 NED April 2011 Now going to a chest xray schedule on a half year bases. It ...

I post this message for the stats.

After 2years and 4 months no sign of any mets. Based on CT.

All the best to all of you!
regards
Martin

Good luck!

Hello members, After the march-april2008 diagnosis of my primary with clean ct and mri of the rest of the body it was red alert at my 4 month schedule last october. Chest xray and ct showed very large lung lymph nodes. They did a lung biopsie and it turned out to be sarcoidosis. Small nodules of sar...

Hi Amanda,
I didn't get radiation. There is a very low chance of local recurrence. But it’s your decision what to do.

//From the MD Anderson Report: 1 of the 22 patients with localized ASPS was local recurrent.


Regards
Martin

Hi Amanda, I'm 29 now and had a +/- 4cm ASPS tumor in my left thigh (about 11 months ago) No signs of mets yet on CT (lungs) and brain (MRI) I’m getting a 4 monthly checkup (Xray only) (they got that suggestion also from the MD report) I know some members would do it different but I feel good about ...