Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Amazing news! You are my inspiration!

Thank you!) I'm very happy as well.
Yes, I've been on Keytruda since March 31.

Update after 3 month on Keytruda: The FDG avid tumor in the right iliac fossa has significantly improved with decreased size and density. It is challenging to definitely delineated this mass now as it is isodense to the underlying muscle, together measuring 2.0 x 3.2 cm on the axial plane (6:210-221...

Magnetic Resonance Imaging Report abnormality within the cervical spine. Small disc osteophyte complex at CB-C7 without significant central spinal canal narrowing. No neural foraminal stenosis Within the superior endplate of T5, there is a 1.2 x 0.5 cm hyperintense T2/T1 lesion demonstrating some in...

Here is the PET scan report (15/02/22): Low-grade FDG uptake (SUVmax 3.2) is seen within a 1.8 x 1.2 cm lytic lesion anteriorly in the right frontal bone breaching the outer table with a subcutaneous soft tissue component. Mild activity is associated a small lytic lesion in the right eighth rib post...

Hi Olga, Debbie, Naynay!

I really appreciate you support and advices. I agree with you and I think it's best to wait for 3 month until next CT Scan.

Thank you,

Cass

Hi Olga, Thank you for well wishes. I just completed egg preservation procedure. I was very concerned about the use on fentanyl and antibiotics (cefazolin) , but doctor reassured me that the type that they used should be flushed out of the body in 24h. I hope it's true. My immunotherapy starts on Ma...

Hi Olga,

Thank you for the article. I've decided to go ahead with egg preservation. I hope it will only delay the treatment for about a week.

Going for MRI and PET scan tomorrow.

Best regards,

Cass

Hi Debbie,

Thank you so much for your support.
Yes, they will be used. I will need to do shots of Gonal F 225, Menopur 225 and after the first week I will need to add Cetrotide+.

Cass

I was ask by my oncologist to stay away from turkey tail for the first 3 month, so that we have clear picture. I was referred to fertility clinic. Never in my life I thought that I would have to go through egg preservation. It's hard to think about kids when you don't even know you life expectancy. ...

Hi Olga, Yes, you are right about the biopsy. Dr.Smrk is taking care of my treatment. So far I don't know about the costs. Thank you for pushing them to use this treatment. I sincerely hope it will help me too. I'm still wondering what is considered as moderate exercise. I do Pilates 2 x week and fr...

Hi Debbie, This forum is very helpful, I'm glad I found it. I'm happy to hear about your son, I'm sure he is a great father. Here is what was written in the papers before the retroperitoneal biopsy: "A well-defined lytic lesion with an epicenter within calvarium of the right frontal bone is pre...

Hello everyone, I'm new to this forum, my diagnosis is very recent. It took me 4 month from initial complain about a lump on my forehead to ultrasound guided biopsy to get the diagnosis: right iliac fossa mass, ASPS, stage IV. I'm 33 y.o female and I live in Vancouver. I've had a leg , and lower bac...