Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Olga, thank you so much for that description. It makes total sense. This forum has been invaluable… without it, I wouldn’t have a clue at all what I’m dealing with!

Seems you’ve had great response so far but I would agree to maybe plan to remove the primary tumor? Maybe they can do some RT to it as well to shrink it even more and help the immunotherapy work better at the same time before removing it. Olga has already discussed the resistance issues which is ve...

Seems you’ve had great response so far but I would agree to maybe plan to remove the primary tumor? Maybe they can do some RT to it as well to shrink it even more and help the immunotherapy work better at the same time before removing it. Olga has already discussed the resistance issues which is ve...

Hi Olga, Thanks so much for your quick response! When I was diagnosed, I had a CT w/contrast of my chest, a CT w/contrast of my abdomen (because of swollen lymph nodes in my pelvis), and a MRI of my thigh, a brain MRI. I have repeated the chest CT and thigh MRI every 3 months. I will be due for the ...

Hi everyone! I have spoken to some of you on the Facebook group, but have just followed along so far on this website. I’d like to post my story here as well. I am a 32 year old woman: wife, teacher, and mother to two young boys. In August 2020, at 31 years old, I was diagnosed. Primary tumor was 18c...