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Re: Ivan rocking it since 2003
Posted: Wed Jan 01, 2014 5:48 am
by D.ap
Ivan wrote:The latest scans have been forwarded to Dr. Littrup to review after the holidays. Apparently, one of the mets which are slowly growing is in an awkward location. The other one is easy. This is based on what the local ablation doctors said after reviewing the scans and agreeing with me that there was a slight interval increase in met size.
Ivan
We hope you get some answers soon so you can plan your next move with removing these possible tumors
You know the drill. Get all the pros and cons of removing the 'awkward' located tumor as awkward =risky to me?
Of course we have no choice having been dx with ASPS, huh ? Life, living is forever risky here on out .
However with your outlook with this disease, you are doing great in your fight to beating it!
Happy new year ! 2014
Love
Debbie
Re: Ivan rocking it since 2003
Posted: Sat Jan 04, 2014 2:25 pm
by Olga
Dr Littrup reviewed the latest lungs CT scans from 12/2/13.
this is his opinion:
"The right lung lesion has slightly increased since March 2013 and even though it is a central lesion, it is still doable with cryoablation.
The left lung lesion has not really gown at all.
That being said, lesions need to be at least 1cm for us to try to ablate them and taking into consideration that there is slight change in one of these, he recommends holding off on any ablation until seeing what the next scan shows."
I guess he did not compare the left scan to few years ago, that way the growth is not seen. We will probably have the next lungs CT scheduled for the end April or beginning May (about 5 months from the previous scan) and go from there.
Re: Ivan rocking it since 2003
Posted: Sun Jan 05, 2014 6:46 am
by D.ap
Olga and Ivan
Thanks so much for the update
We are all so appreciative of your example to how this ASPS can be met head on and be fought
I hope for there to be a day when we ALL will not have to be consumed with scans and doctors
and then live our lives free of so much fear of this beast
Take care my friends
Love
Debbie
Re: Ivan rocking it since 2003
Posted: Sun Jan 05, 2014 3:30 pm
by mikko
Great to hear this update. Dr. Littrup really is a pro.
Re: Ivan rocking it since 2003
Posted: Mon Jan 06, 2014 11:54 am
by Bonni Hess
Hi Olga and Happy Healthy New Year best wishes to you, Ivan , and your family.
Thank you for the update on Dr. Littrup's review of Ivan's most recent lung CT scans. I am so grateful that Dr. Littrup feels that the centrally located lesion in Ivan's right lung is ablatable and that he will be able to ablate it if it continues to grow and becomes larger than one Cm.
In the meantime, I am holding very tight to Hope for good news of no new mets from Ivan's upcoming brain MRI at the end of this month and his abdominal MRI in February.
Take care and enjoy a beautiful beginning to the New Year.
With special caring thoughts and continued Hope,
Bonni
Re: Ivan rocking it since 2003
Posted: Mon Jan 06, 2014 1:44 pm
by D.ap
In the meantime, I am holding very tight to Hope for good news of no new mets from Ivan's upcoming brain MRI at the end of this month and his abdominal MRI in February.
I second that hope of Bonni's!
Debbie
Re: Ivan rocking it since 2003
Posted: Fri Jan 31, 2014 8:34 pm
by Bonni Hess
Dear Ivan and Olga,
My special thoughts have been with both of you all day knowing that today was the scheduled brain MRI which always makes for a physically and emotionally exhausting day for patients and family members. I know that you probably haven't received the scan results yet, but I just wanted to tell you that my thoughts and very best wishes are with you and I will be anxiously awaiting your next update which will Hopefully bring good news of no new brain mets.
With warm hugs,special caring thoughts,healing wishes, and continued Hope,
Bonni
Re: Ivan rocking it since 2003
Posted: Tue Feb 04, 2014 4:26 pm
by Ivan
Actually, it was pretty easy Bonni. No results yet
Not feeling any anxiety as of yet.
Re: Ivan rocking it since 2003
Posted: Tue Feb 04, 2014 5:14 pm
by D.ap
Keep the faith , Ivan
Love
Debbie
Re: Ivan rocking it since 2003
Posted: Tue Feb 04, 2014 5:15 pm
by D.ap
Ps you were able to use the MRI with 3mm definition ?
Debbie
Re: Ivan rocking it since 2003
Posted: Tue Feb 04, 2014 7:03 pm
by Bonni Hess
Thank you Ivan. Keep thinking positive thoughts as you have always done so well throughout your long courageous ASPS journey
Sharing your positive thoughts with special caring, best wishes, and continued Hope,
Bonni
Re: Ivan rocking it since 2003
Posted: Wed Feb 05, 2014 7:42 am
by Todd's mom
Thinking of you, Ivan, and hope the brain MRI is clear!!!!
Re: Ivan rocking it since 2003
Posted: Tue Feb 11, 2014 3:29 pm
by Ivan
Brain MRI = clear. Next up abdominal MRI on the 20th.
Re: Ivan rocking it since 2003
Posted: Tue Feb 11, 2014 5:25 pm
by Kathy
That is fantastic news Ivan! We never stop thinking of you and we are so thankful for you and your Mom
Re: Ivan rocking it since 2003
Posted: Tue Feb 11, 2014 6:05 pm
by D.ap
Ivan
Yesssssssssssssssssssssssssssssssssssssss!!!
Great news my friend
Thanks for the news
Love
Debbie and family