Thank you once again for your faithful updates and sharing of invaluable anecdotal information. I am so happy that the expert review of your scans confirms stable disease, as well as the apparent non-ASPS diagnosis of your liver lesions
. We have had a couple of other ASPS patients on this Board ( Mario from Arkansas and Todd from Wisconsin) who have had similar experiences with suspected liver mets which appeared to be just benign lesions which ultimately did not increase in size during a lengthy time period. Unfortunately, neither Mario nor Todd's mother have posted updates for quite awhile so I am unsure of their current disease status and the status of their liver lesions. You could possibly try to contact them through a private message on this Board by locating their names on the Personal Updates topic. You and your doctors are to be commended for your vigilance in closely monitoring your disease with complete and closely reviewed scans. My only comment and concern is that I personally feel that scans should be done with contrast to ensure the most accurate scan results in determining if there are any new mets or increased growth of existing mets. I understand that there are concerns about the use of oral contrast because of the possible negative effect on the kidneys, but we have always felt that the benefits outweigh the risks, and when Brittany drinks oral contrast, we make sure that she drinks plenty of water to offset the effects on her kidneys. How often will you be having scans and when are your next scans scheduled? Take care dear Martin, know how deeply appreciated your faithful information sharing is, and keep in touch as you are able.
Sharing the great joy and relief of your very good scan results with much happiness, and reaching out to embrace you with happy hugs, healing wishes, and continued Hope,
Bonni
