Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Thank you dear Olga and Debbie for your continued special caring, strengthening support, and shared happiness for Brittany's good scan results. Yes, it is very frustrating Olga that we have not yet received Brittany's EEG results since we always request/insist to receive all of her orher scan result...

Hello again dear Kathy, As always, our extremely knowledgeable and always well researched Olga has graciously shared some excellent and invaluable information and insights which will Hopefully be very helpful to you,Tom, and his oncologist in determining the cause of Tom's perplexing bowel blockage ...

Dear ASPS Community Friends, In the midst of this long, seemingly endless, very snowy and cold Winter where we Live in the Pacific Northwest and Montana, our spirits have been brightened and our hearts warmed by the VERY GOOD NEWS!! results from Brittany's February 28th four month Cediranib Clinical...

Dear Kathy, I am so sorry for Tom's painful bowel obstruction problems, but so deeply grateful that surgical examination did not find any tumors or other concerning visible cause of Tom's 5 bowel obstructions. I Hope that an easily resolvable and treatable cause can be found, but I also Hope that it...

I will be anxious to read your comprehensive review Ivan, and am very appreciative of your efforts to compile your observations and evidence and to share them with our ASPS Community. I have personally observed and always felt that a positive attitude plays an extremely important role in strengtheni...

Dear Nhi, I am very perplexed and frustrated, as I know that you must be too, as to why the radiologist and oncologist inexplicably and I feel inexcusably failed to tell you about your new mets when they were seen on your scans 8+ months ago in May, thus allowing you to erroneously/ naively believe ...

Dear Nhi, I am so deeply sorry for the heartbreaking results of your abdominal/pelvic scans. Unfortunately, based on my 17 and a half years of ASPS experience, this is the cruel nature of this indolent ,but very unpredictable, disease which can appear to be stable for a period of time and can then b...

I love to hear uneventful updates ivan, and am SO happy that you are feeling well with totally clear brain and lung scan results. It is perplexing and frustrating that you have to wait a couple of weeks to receive your abdominal and heart scan results, but I know that seems to be the usual situation...

Hello again dear Nhi and thank you for the additional shared information about your scan regimen. I am grateful that you are now receiving abdominal/pelvic MRI's instead of CT scans which pose such a dangerous risk of radiation exposure to your vital organs. Brittany has undergone three Cryoablation...

Dear Nhi, I have been away from the computer and the Discussion Board for awhile and am just now getting a chance to catch up on the posts. I am SO VERY happy and excited for the upcoming Spring birth of your surrogate borne twin babies,, but my heart is breaking for your recent diagnosis of a manub...

Dear Jussi, I am very confused by, and unfamiliar with all of the very detailed scientific data which you have been providing and discussing, but am humbled by your extensive knowledge of the various lab values and the relevance of them to the status of disease progression or cancer inactivity. I do...

Dear ASPS Community Friends, On Wednesday, Novenber 28th, Brittany experienced a sudden very frightening grand mal type seizure for which she was examined and treated at the ER. A brain CT and brain MRI were done and VERY thankfully no bleeding in the brain nor any brain mets were found. After recei...

Dear Cindy, Thank you for the thoughtful update with the very good news results of dear Sam's biopsy showing that the suspected lesion is very thankfully not ASPS. Since the biopsy results seem to indicate that Sam doesn't have disease progression, will he be able to resume his participation in the ...

Dear Ivan and Olga, I'm so sorry about the elevated potassium concerns, but Hope that it is easily treated and resolved, and am very grateful that you are so well researched and knowledgeable about the situation. As with all of the new targeted systemic TKI and ICI treatments, there are still so man...

Dear ASPS Community Friends, As our American Thanksgiving approaches, we are especially thankful for having received VERY GOOD chest/abdominal/pelvic scan results from Brittany's November 8th four month Clinical Trial scans during our last week's visit to cold and snowy Edmonton. VERY thankfully and...