Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hello Martin, Three of the doctors are saying to do the radiation and one has not responded. Though i do like my doctors a lot it and they are great! It seems i am falling into a void and no one is even responding to my calls :/ I called last week and yesterday. I think if it is a small chance it ma...

Hello skinnyangel,
I am new here and to ASPS so I cant reply well to your post an help.
I am so sorry that you are both going thru this
There are great people here and I am sure when they log in and see your post they will reply

Amanda R

Hello :) I have seen that others have posted there Pathology reports so i shall post mine. Though i have no idea what any of it really means :/ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Sections show a portion of an organoid neop...

Hello Olga :) I agree with you that we have others reading and not posting and i wish they would. :( No matter what stage they are in it is still ASPS. I have found a dear friend Bonni from this forum and she has been my rock thru this and I dont know where she gets her streangth! I cant even expres...

Hello Martin! :) Wow thank you for your post! I am a wee bit older then you and smoked so what they think they are seeing in my chest maybe from being a smoker or from an old uppser resp. My rib maybe from an old injury or some thing of that matter and we are doing a needle biopsy with a CT to make ...

Hello Olga :) I am glad to hear that i am not the only one that has felt better after having the tumor removed. I am about to start the new diet but it seems that it is fit to the paitent rather then everyone with cancer gets this diet. The only thing i see in comen is the Flax Seed Oil and no caffi...

Hello Bonni :) I am so happy that you are both home and that she is as usual positive, strong and starting to smile again. I will e mail you back today when i get home i am running in a lil bit to see a doctor about a diet that should help me get my body very strong for this fight i am just starting...

Hello :) I was just wondering did anyone else feel better after there ASPS main was removed? My skin is even starting to look better. I am not sure if it is the new foods i am eating but i look more healthy and also feel more healthy :/ I have been reading the forums and wanted to say that all of yo...

Hello :) Today i got a call from my chest surgen and he said that the six things in my lungs looked to him like they were from an old respratory infection and not cancer. He told me to start the radio on my leg ASAP and that we may have gotten this in time :/ We will be doing a CT with contrast end ...

Hello :) This will be my first post giving info and up dates on my treatment. I am going to start to use Amanda R because we have another Amanda on the boards :) Almost four weeks ago I have the primary that was 6cm removed from my right calf. They took four margins around the tumor and they were al...

Hello
I was very sleepy on and off for about a year and in the area in my right calf that the 6cm mass was there was pain and my foot seemed to not move well when i tried to move it up and down. Other then all of this i felt better then i have in years.

Amanda

Hello
Would you mind e mailing this to me and i will take it to the oncologysts that i will be seeing and also get there imput.
If i do need a treatment i would actualy like to try this. I wil post back what they tell me. I will be seeing them in about three weeks.
AmandaVWA@aol.com

Amanda