Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hello <3 I am still fighting with a paid cigna PPO plan... bastagez1 They broke the new health care act and also went into bad fith when they were lying to medicare an blue cross saying they were not first payer when they were .. i have it all documented! I am still looking for a lawyer that is not ...

Great info ! Thank you! They list my onc btw that did the cryoablation on me :) http://www.cancer.net/find-cancer-doctor?Distance=3&longitude=-118.44518119999998&latitude=34.068921&searchString=&search_term=University+of+California%2C+Los+Angeles%2C+Los+Angeles%2C+CA+90095%2C+USA&...

Wow so sorry to hear this :(((( i havnt talked to her since we lost Gem :( The few times we did speak it was very nice! An she was a fighter!!!! Many as bonnie posted have a lot to be thankful for now after what she did with the Ced trial an them trying to pull people off even if it was working. Gre...

Hi Bonnie <3 Yes, this fight after 5 years is taking a huge toll on me an my fight it almost gone :( And depression yes i have it now an i hate it.. an i agree with her i dont want to take any thing also! o the pills make her sleepy? I can take a child dose of a medication an i will sleep :( I will ...

HI I am taking Gabapentin *spelling* an it makes me sleep ... I zone out to a stoner after about an hour after taking it.. We call it the gabba gabba pills lol I am 200mg at nights. we were doing it three times a day but i was asleep all day an very upset at that! I would rather be awake in pain the...

Hi hun <3 I do to read an its funny yu ask that.. ever since my surgery i have had worse vision! I will read this link in a few ty <3 i am laying down for a lil :)) I am still 15 minutes later reading this! Wow hun ty!!! This is wonderful an more information then my surgen has ever given me! I am pa...

Pain pain pain!!! Please, remember after a HUGE surgery there will be nerve and muscle pain an believe it or not that loving surgeon that you thought would be there to help you is ***POOF GONE*** Mines reply to the pain 10 out of 10 is Yes, this phenomenon does happen??? WTF does that mean? you ego ...

Hello <3 Pain is still there an we are now talking about nerve blocks! Problem is i would need to have a surgeon that will actually talk to others and his patient! His response was "Yes, this type of phenomenon does happen" Now WTF was that response!!! I told my pain Dr that was the respon...

Bonnie and Olga,
what about Cryo on the sinus met?

If it were me that's what i would look into thru UCLA...

Thank you for posting this <3 I am a ASPS patient as you know with an adrenal met over 2 cm sitting on top of the adrenal gland :( They are ordering CT with an WO contrast an i am requesting that while they have the dam contrast in me IV an drinking :( they scan pelvic an abdomen an lungs with an wo...

Hello other ((AMANDA))) I agree with what everyone has said an Bonnie an everyone herere helped me a lot in deciding what to do. Because of your age i would also bet you have had this a long time! My Doctors said that about me i am also not a teenager ;) Please bcheck to see if the lung mets as Bobb...

Awww geez :((( Hugs you! I am so thankful you are posting here an so thankful they found this an that a plan is starting to help your son! What state are you in an do you have a PPO insurance? When i had my jaw tumor removed an it was a huge head an neck surgery my vision got better. seems that the ...

Hello :) Thank you so much for posting this! I feel better reading this! You an Tok have been on my mind... I am so glad he is receiving well over due care :) Depression is normal with pain but needs to be watched closely. Though i don't advise his wounds or radiation areas being the sun i do think ...

Hi well, he is a great loving pain doctor and i recommend him highly!!! The treatment lowered the pain but didn't stop it at all :( I know it is going to break his heart an i dont even want to return the call an let them know :( I am also starting a low dose nerv med I am still doing the gel an lido...

Lynette :) As Debbie said please look at the post Olga made. I just had a HUGE tumor removed via cryo *cold* an so far its is almost painless an breathing is almost 100% from what i can feel and sounds are starting t get clear in my lungs when i listened today it was close to silent now. It is hard ...