Cure Alveolar Soft Part Sarcoma International (iCureASPS)

A quick reply then sleep :) We will try an stay ahead with surgery As far as we know it is the few growing mets in lungs left In two weeks they will be my topic with my once an I will be reaching out to all of you when making a decision There is a med used in reference to bone cancer an I was asked ...

Hello <3 I am home an feel so loved an relaxed. So relaxed I am eating an sleeping non stop. My arm they found a bone met an it was operated on also. Dr Brian was the dr that did the wonderful work on my leg primary! He said it went well an again we got it. I have been told by my team under no circu...

hello <3 Just an update an to let you all know I am doing very well an I go home tomorrow. The rehab saved my life an I feel blessed I was able to spend a week here. I go home tomorrow an have spent time testing an doing OT PT ST an neuro psych testing to make sure I am ok. I am thank the load! the ...

Bonnie :) I am no longer in denial an fear more now not getting every three month scans an I feel very lucky to have you as a friend :) We have two plans for insurances so maybe I'm not going to have any problems If I get scanned faster then they are smaller an I now fear the surgeries more an when ...

Today went great they said I will be sent home Friday :) I'm not sure why targeted radiation but I will ask before I jump an just do it I will talk to them about the 3 month scans an it maybe that is what they are saying to do I don't remember much it was frontal lobe area an I am lucky to be alive ...

Dear marg <3 My arm pain was asps an I was operated on two days after my brain surgery Bone cancer pain is the devil an I use ice an Advil to help :( it's not going to stop it but the anti inflammatory seems to help me I actually spoke with my drs about this fight An though they couldn't define how ...

Hello,
My pains that turned out to be asps started when I became pregnant 17 years ago and I am going to ask my dr to stop my monthly because it's weird it started to get bad and now I had this brain and bone met....

Though it is heartbreaking I do believe that it awakened my asps...

Dear Olga an Ivan I am just seeing these posts now :( I hope that you are better Ivan I also just had problems with anesthesia I evidently didn't want to wake up I'm shaking my head we have had this a while an now it seems we need to beat its ass again to fight it back With all my heart I believe yo...

I saw a few posts an I want you all to know I love you so much An thru this I was not conscious much 6days I don't even remember :( They got it all he said it was sitting on top An said by the grace of god an they are shocked I will be ok I will be scanned every 4 months for two years an I won't exc...

hello everyone <3 I'm doing really well because of the size I stayed in a rehab swelling an other weird mind stuff an it makes it easier I think on hubby am son I am spoiled in this place an they are healing me an making sure meds are on it :) I am here still I swear as an act of god They got all of...

From the hospital I send you love! Yes she is now a angle an will be standing next to a child cancer an you. Her new area is free and no fear pain or open questions of what next She is beside, inside, next to you an surrounding you. The feeling while you sit quietly and feel a whips of love is her. ...

hello :) This will be short an I will try an post an reply tomorrow I dogged a bullet!!!! I was at home and fell felt odd asked my husband to help he came right home. fIRST the ct scans of brain I had missed a 2.3 tumor!!!!! I was blessed I had one of the best brain surgeons right thee an iris all g...

Dear families an paitents that have left this world an have been quiet an so we do not know your names! But you are in my thoughts an in my heart i know of so so many that read here an do not post! If you have a loved one that you lost an was murdered by ASPs please post here an please know you have...

what they are doing to you CIGNA they are doing to me an many others! Part of there training is lies .. I have now two documented times they have gone into bad faith! It seems when cancer stage 4 enteres the picture they start to play games... nice thing is they are so stupid they do not know how to...

"Oxycontin"I hate! an they gave me that with delated in the hospital an i was seeing things! I was so frightened :( Do you have a safe pillow and blanket for him to take to the hospital? I would suggest you get them it helps me an i am not a tulle child i am a mother and a baby hehehe afte...