Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Dear Bonni & Olga <3 They want me to start Thursday an I am three weeks out an I have not healed enough in my opinion on the right shoulder. So I am as both of you suggested asking these thinks of Dr Hacemian spelling it wrong hehe He is my same loving hugging radiation dr an is very into all yo...

Dear Olga :) I have been drugged an at times I miss replies or to thank a dear friend that is going thru a battle also an has taken the time to reply to me! Thank you from my heart for your support an amazing knowledge an for helping my life to be prolonged! I just wanted you to know that all you po...

Hello :) I will reply to a few an then update in one post... Hello Deb, it was in the frontal lobe hence no cognition damage :) I actually requested neuro psych meet with me to make sure, lol to me I would have been devastated .... After all surgeries we need games like a game that I can't spell it ...

Hi :) So so glad you are doing better! :) I was concerned an the other half feeling like you were in the time to not be a cancer patient an get back to being the healing you! I shall start back swimming but it will be around six weeks from now an I am bored of being in bed, lol Huge hugs an cheers y...

Hi Jenn I just had a two cm tumor removed Hun get a MRI ASAP please :( I fainted an a half a week later I woke up I had dull head pain explained by so many things an al other signs explainable Then they went away An I skipped away like an idiot I am lucky to be alive an was on the hospital for almos...

Hello <3 You taking the time to post to me means so. Much you are in the mist of saving your loved one You have both been in my thoughts I am going to bed now but remins me to tell you what I said to my doctors anout the Heath situation you have been facing Love you an hugging you back. :) Dear Aman...

Hello :) I was not up to it an believe my husband needed this time with his mother An he looked a let better when he came home an they got me a coffee machin froth milk fift Love an light Enjoy a good dinner with your mother-in-law dear Amanda but don't overdo. One step at a time and take as much ti...

hello Bonnie Yes, I missed that about the injection I have been so Foggy an I am sorry Hun I missed it,, My pain bucket is clear an the horrid pain I had yesterday is down an resting in bed an not being stuper woman yes stuper lol able to put up hollow end decorations in a single bound I am frighten...

Hello Deb :) Other then hurting myself like a idiocy I am healing really well. It's a lot to heal from is all They started me on lyrica spelling And it has helped me a lot because I did not relies I was in so much leg pain this whole time A bad bad situation has brought me gifts Love you a huge hug!...

Hello Bonni I dearly hope they do! The growth an sexual puberty hormones are in my opinion a fires torn to asps an the MRI is thirty minutes Seeing your little one go thru this an the feeling of not doing this one little thing a year is so not worth the outdone I also understand the fear of contrast...

Hello Olga I'm sorry it has taken so long to reply The met in my right arm was bone :( my asps loves to attack my bone It's super painful Very hard to discern even thru pain what is an isn't ok to do an I found this out when I was ins ever pain for the last twenty four hours Boy oh boy I when healed...

Hello :) These emotional feelings that were worsening from swelling pressure on frontal lobe long before surgery Easily brought to tears Feelings of being over whelmed easily Things that were not myself Cussing when feeling passionate of topic being to passionate on a topic I'm a mellow lady Dependi...

Deb, I love you! Thank you! I am healing so fast other then shoulder an arm that I am frustrated Pain sucks an I have been here an will heal :) Thank you for caring like a mommy you children are blessed Update as of today I can feel more on my head it is in some places on scalp mixed It feels weird ...

Greetings, I am healing from two very hard surgeries one of witch was a tumor in my brain. I ran around an ignored signs an did ct. on my brain :( Doctors care for patients an hate saying things that frighten us. An if you say you feel great an you seem 100% they tell you to scan and run out happy a...

Just a post saying today I slept for the first time in two weeks like a baby!
I feel better
I am having pain I near an jaw but after all I have been thru. It is expected

I wil try a say hello tomorrow

Ivan you have been quiet an my thoughts are with you I hope you are alright

Love to all
Amanda