Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hi Lee, Sorry for the disease happen to your sister. However it's lucky for you to find this forum and meet me. We can contact by QQ for better communication, mine is 3576413. You're welcome to contact me. Since George will be on Cryo ablation on Jan 5, i'm afraid i won't have access to the internet...

Hi Bonnie, It has been some time since my last update. I read part of the story of Brittany (it's not easy to read so much English for me), as long as I read, it's not easy for you and Brittany. However, Brittany is lucky that Cediranib works for her! That's the most important thing. Take good care ...

So glad to see your recovery. Wish good news from Dr Littrup for you.

Thank you, Olga. So looks like cyro is the first choice in the 3 kinds of ablation. We will go to the doctor maybe next week to see what they say. In china, it's not easy to talk to the doctor because there are too many patients there that they doctors don't have patience and time to talk about the ...

Thank you so much for your kind reply, Bonni. It's really detailed and consistent to the my questions. It will never boring me. Please can you give a warm hug to Brittany for me? Interesting, I'm also a mother need to be extremely strong. Since the brain swelling can't dispear for months, we will ha...

Thanks so much for your quick and kind reply, Olga. Say hi to Ivan for me and George. He's such a brave fighter to ASPS and an encouraging modle for George. It's so glad and released to know other ASPS patients have great success from Gama knife. That's another one of our concerns on the brian mets,...

Thank you every one for reading my long and boring posts. It will be highly appreciated if someone can give some opinions here. What we can think of now is to deal with the mets in his lung from big to small (the 2 biggest ones are about 3cm). There are 3 ways we can think of and are provided here i...

Hello there, my name is Lynette from China. I'm so glad to find this forum and so many kind friends here. :D First of all, apologize for my poor and plain English. :) I'm posting for my husband George, who is 33 years old now. George was diagnosed in Mar 2007. He had a lump on his right crus—about 7...